Saturday, July 18, 2009

Update

Sorry Facebook friends, some of the message repeated here!

Thank you all so much for the warm thoughts and sweet comments! We're doing quite well. We are very happy with Loki's good Drs. and relieved they keep an eye on him. Seems the diagnosis is esophagitis (inflammation of esophagus caused by reflux). Eating a bit more now. He is much less uncomfortable! We are also in a much quieter room than last time (two doors up from previous room). That makes a huge difference. I only slept about 1.5 hour, but feel relatively rested because it was quiet overnight.

Loki slept better than ever, after he first screamed his lungs out when they tried to put an IV in. I think not eating decreases the reflux and thus makes for more comfortable sleep.

The nurses are very sweet and all charmed by Loki. They linger around his bed a little after procedures, playing with him or offering to walk him around so I have a break. Cute!

Blood tests came back normal, although protein level in his urine was somewhat elevated. They will test again. I hope to talk to the Dr. more to find out what this may mean.

Looking forward to dad's arrival soon!

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About Loki Sky

Loki Sky is a special little man. He was a very early micropreemie, weighing only 610 grams (1 lb, 5 oz) after 24 weeks, 3 days gestation, born to an American Father and a Dutch Mother in Berkeley, California on October 18, 2008.

On January 11, 2009, while still in the hospital NICU, his one kidney stopped working. It was repaired after three surgeries. After spending time in three hospitals in three cities, Loki came home on February 17. He struggled with eating, and then stopped in July, leading to 8 days in the hospital, a failure-to-thrive diagnosis, and a NG feeding tube. On October 10, a minor surgery installed a G feeding tube. Another procedure replaced it with a new one, and then again with a Mic-Key button in Jan. 2010.

In August 2010, he and his parents moved to the Netherlands.

Read about his first name.
Read & hear about his middle name.
See photos.
See videos.

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Please consider donating to Loki's Holiday Gift Drive for the Alta Bates Summit Medical Center NICU. You can donate by Paypal or credit card here:





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