Monday, December 21, 2009


We apologize for going so long without a post. One reason is that we've been busy with Christmas in general and the Loki Sky Holiday (NICU) Gift Drive specifically. It is a huge success. We have received over 140 items, 8 Whole Foods gift certificates (thanks to our friend Pia's blog), 5 gift certificates for healing massages (thank you Anastasia) and almost $1000 in cash. Each family will get 2 or 3 gifts, and the economically neediest few families will get the cash as gift cards of $100 each. We will hand them out on Thursday, which is Christmas Eve day. Of course we will take some pictures and update the blog. Many thanks to all participants, you made this a huge success.

Another reason is that Loki is stable. The other night I described Loki as having stable health but being labor intensive. We have a system of bandages and tape for keeping the tube in. His reflux and overnight pains come and go, and we experiment with our feeding patterns a bit. We are finding the limits of what he can take in, and it is not enough. He is growing, but slowly. A fundoplication surgery may be considered if his reflux does not subside in a few months, but this has not been discussed seriously yet.

The good news is that Loki has been developing well, particularly his receptive language. We ask "Where's the ____?" and Loki can point out perhaps 15 things, most of them in both English and Dutch. He can stick out his tongue, touch our noses and offer his pacifier on request. Finally, Loki will go get items on request such as his bird, duck and sometimes ball. This learning is a very fun and rewarding process to watch.

This week, he is fascinated by lamps. When we hold him, he points to and wants to be held next to any lamp. He likes to touch them, and gets a big kick out of watching them be turned off and on.

Also this week, we got a long-term visitor. Rebecca is the 18-year-old daughter of one of Mom's friends from high school. Thus Mom has really known her from day 1. Rebecca will stay here for about ten weeks, helping out a little with Loki. She's already been of great assistance, freeing some of mom's time to work on the gift drive

Loki's condition is reliable enough that we had our first day of recreation in San Francisco. Mom, Loki, Rebecca, and I did some holiday shopping at Union Square, under the big Christmas tree and ice skating in 60 degree weather, and then to Westfield shopping center. We then walked through China Town and up to Nob Hill. A really great day.

We have been negligent in taking photos and especially video. I'll try to dig some up in the next few days.


Richard en Maaike said...

Good to hear the Gift Drive is already such a succes! I hope you will have a wonderfull time if you hand out all the gifts on thursday.
Loki is making big steps I read. This phase is so much fun, especially for you as his dad, communication is becoming different and better each day. It's a wonderfull development that won't stop for the upcoming years (Flo is now using 3 word sentences, also very exciting and funny).
We hope you enjoy this days up to Christmas and we wish you lots of love and health!!
Big kiss Maaike (and the boys).

Elaine Stiles said...

Hee, hee. Milo also loves lamps, and immediately wants to be carried to one when picked up so he can be "nice" to it - e.g. pet the lampshade. :)


Mom said...

I like the "nice" part Elaine, we'll add that one to the act ;-)
Did you get my email regarding stroller? Starting to be forgetful!!

marieke said...

Lieve mom, dad, Loki and Rebecca,
Wow, unbelievable how succesfull the gift drive is!! Take your time to give the presents and enjoy the feeling. I'll be with you with my thoughts.

Have a very warm, beautifull christmas, big hug from us, Marieke en Martin

Suzan said...


Dat klinkt erg gezellig. Succes met het harde werken met voeden. En een hele fijne kerst gewenst!

Dikke zoenen vanuit de sneeuw (wel 20 cm!!!!)


About Loki Sky

Loki Sky is a special little man. He was a very early micropreemie, weighing only 610 grams (1 lb, 5 oz) after 24 weeks, 3 days gestation, born to an American Father and a Dutch Mother in Berkeley, California on October 18, 2008.

On January 11, 2009, while still in the hospital NICU, his one kidney stopped working. It was repaired after three surgeries. After spending time in three hospitals in three cities, Loki came home on February 17. He struggled with eating, and then stopped in July, leading to 8 days in the hospital, a failure-to-thrive diagnosis, and a NG feeding tube. On October 10, a minor surgery installed a G feeding tube. Another procedure replaced it with a new one, and then again with a Mic-Key button in Jan. 2010.

In August 2010, he and his parents moved to the Netherlands.

Read about his first name.
Read & hear about his middle name.
See photos.
See videos.

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Loki's Holiday Gift Drive

Please consider donating to Loki's Holiday Gift Drive for the Alta Bates Summit Medical Center NICU. You can donate by Paypal or credit card here:

Click here for more information, including how to pay by check. For all posts on the Gift Drive, click here.