tag:blogger.com,1999:blog-6640024441826053580.post127581102882305591..comments2023-04-04T05:47:06.272+02:00Comments on Loki Sky: Milestones and strugglesDadhttp://www.blogger.com/profile/17238601263297217370noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-6640024441826053580.post-70414577995593541332010-04-27T00:27:10.161+02:002010-04-27T00:27:10.161+02:00Great post, Kat. I also feel like I must qualify m...Great post, Kat. I also feel like I must qualify my responses to questions about how the kids are doing with the caveat that there are many more hurdles ahead. I am constantly reminded of this (even though I also refuse to dwell on it). Most recently, Milo had a hearing screen where the technician reminded me that micropreemies are at risk for progressive hearing loss over their childhood. A few months back, our pediatrician (mother of preemie triplets) explained that her sons have fairly significant learning and processing disabilities that will be with them for life. Her sons are happy, active, social kids, but their birth circumstances marked their bodies and brains for life. Then of course, as you say, we must rejoice in the miracle that our children are here and happy and more or less healthy. Glad to read your words today!Elaine Stileshttps://www.blogger.com/profile/12480458679091208317noreply@blogger.comtag:blogger.com,1999:blog-6640024441826053580.post-65935388138157659792010-04-11T21:05:00.631+02:002010-04-11T21:05:00.631+02:00I would love to see this published somewhere...I l...I would love to see this published somewhere...I learned a lot reading it, and ironically, had a very hard morning with Bri, whose sensory overwhelm, anxiety in new situations, and constant need to be almost on top of me at all times can be overwhelming. Thank you for reminding me that early experiences, including what happens in the womb, are critically influential. I too know that my child will "be fine" in that larger sense--but I too recognize that there are lingering issues that likely will always rear up. I am constantly vigilant for any sign of a problem, because I know what the stakes are. You know that we all think you and Jesse are awesome parents--but that also gets old because you are also human beings who get tired, overwhelmed, and stressed just like anyone else. You do what you do because Loki needs you to, and because you have unique experience that helps you know what to do...but I know it takes a toll. You are indeed running a marathon, not a sprint here, and so is your beautiful son. <br />Love,<br />CherylUnknownhttps://www.blogger.com/profile/07345672289838094819noreply@blogger.comtag:blogger.com,1999:blog-6640024441826053580.post-44638161752542270482010-04-11T14:06:43.190+02:002010-04-11T14:06:43.190+02:00Elke keer lees ik met bewondering jullie verhalen ...Elke keer lees ik met bewondering jullie verhalen op de site. Wat hebben jullie al veel meegemaakt en wat kun je het allemaal goed onder woorden brengen. En inderdaad zoals de anderen ook al zeggen Loki boft met ouders zoals jullie. Liefs EvaAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-6640024441826053580.post-35485146720796260602010-04-11T07:50:49.961+02:002010-04-11T07:50:49.961+02:00I agree with Janie, and mom, dont ask for a please...I agree with Janie, and mom, dont ask for a please to help loki develop the way dad and you do. This little guy has other needs than other kids. You both know exactally how to handle those needs. You are my hero´s!! XX Marieke en Martinmariekehttps://www.blogger.com/profile/10555357529894582003noreply@blogger.comtag:blogger.com,1999:blog-6640024441826053580.post-30766731751349084922010-04-10T14:33:54.320+02:002010-04-10T14:33:54.320+02:00Loki is so very lucky to have you both for parents...Loki is so very lucky to have you both for parents. The endless dedication you both have will help him develop in every aspect far greater than anyone could hope for. He is such a smart little boy. Love you all very much - can't wait to see you!!!Anonymoushttps://www.blogger.com/profile/04126933912482449401noreply@blogger.com