Wednesday, October 7, 2009

Welcome:

Welcome to our newly designed blog! We are very excited about the new lay out! Thanks to Richard our blog now matches Loki's spunky and hip character :-). We hope you enjoy it as much as we do.

We came home Sunday afternoon after 48 hours in the hospital. Loki is doing well, although the new button (g-tube) is not quite functioning well. We are not sleeping much because of this failing button and hand delivered tube feeds. W will explain later in detail what the problem is. We will see Dr. Rhee tomorrow, very hopeful to find out more and what we can do.

Finally, Maaike en Richard will be leaving tomorrow (Wednesday) after providing much, much support and help for the last week. Not sure how we would have managed this week without them.

More photo's soon!

6 comments:

friteens and hel said...

Ooh waaais this is so nice and really fits the little big guy

c u soon, frits and heleen

Kyra said...

Wow, very mature layout already. Great that you had a lot of support from Maaike and Richard. Hope this tube hassle is over soon enough to finally enjoy your homecoming from vacation.

marieke said...

Wouwie! This fits Loki very much! Lots of luck with the button, wish the problem is solves very, very soon so you can sleep again. X

Sarah Marcus said...

Jess, Lijn, and Loki.... Looking forward to see you in a couple of weeks. Hope the button issue is solved quickly.
Miss you and wish I could come to celebrate Loki's #1 birthday.
Love,
Sar

Cheryl said...

If it it a blockage issue, call me. I have several ways to solve that...though of course the doctor will, too. He doesn't have the MicKey yet, does he? Is it the long tube?This will sound horrible to you, but what works best is Coca cola. Yep. Apparently, it's better than liquid plumber. I saved many a trip to the ER using 5 mls to flush out a clogged tube. I got to the point where I felt like what does kill us makes us stronger...even junk food! I also found seltzer water worked okay, but not as well as the horrible stuff. It was a tip from another mom on a gtube support site and it worked like a charm. I never had clog issues with the mic-key--just the long one. Anyway, I am an expert on this, and not because I want to be, so call me!
Cheryl

Cheryl said...

I meant what does NOT kill us...I'm sure you understood...

About Loki Sky

Loki Sky is a special little man. He was a very early micropreemie, weighing only 610 grams (1 lb, 5 oz) after 24 weeks, 3 days gestation, born to an American Father and a Dutch Mother in Berkeley, California on October 18, 2008.

On January 11, 2009, while still in the hospital NICU, his one kidney stopped working. It was repaired after three surgeries. After spending time in three hospitals in three cities, Loki came home on February 17. He struggled with eating, and then stopped in July, leading to 8 days in the hospital, a failure-to-thrive diagnosis, and a NG feeding tube. On October 10, a minor surgery installed a G feeding tube. Another procedure replaced it with a new one, and then again with a Mic-Key button in Jan. 2010.

In August 2010, he and his parents moved to the Netherlands.

Read about his first name.
Read & hear about his middle name.
See photos.
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