Friday, November 6, 2009

When it rains it pours:

Just when we thought it couldn't get worse, it did. Loki's stomach bug is far from gone. We are unable to get him up to full feeds and in the mean while a lot of his feeding comes out either end. He was very uncomfortable over night. If we slept 45 minutes straight it is a lot. Thanks to Margaret for the 3 hour nap I was able to take during the day because she came to baby sit our little guy.

Opa left on Monday and Oma started to feel a little sick on Tuesday. We have been keeping her away from Loki which is obviously sad and frustrating. Dad came home on Monday evening but found out on Wednesday morning that he may have been exposed to the H1N1 virus last Sunday. We spoke with Loki's doctor's office and the consensus is he needs to stay away until the 7 day incubation period is over. He is staying elsewhere. Only three more days to go. He has been feeling fine and we are pretty sure he won't get sick, but we cannot take any chances with Loki. Especially since his immune system is down from this stomach issue.

It is worrisome, yet no surprise, to see how difficult it is for Loki to overcome this relatively simple illness. Apparently it takes typical children approximately 24 hours to get rid of this virus. It took me a little over 12. Loki has been battling with it for almost a week.

Today we will see our GI doctor because in addition to all of the above Loki's skin around the g-tube is starting to break down.

Who ever said you should enjoy the first years because they are over before you know it?

11 comments:

Dad said...

I miss Loki. I miss "mom."

Richard en Maaike said...

Ik denk aan jullie!!
Kus Maaike

heleen en frits said...

Waaauw, that so many things can go wrong with you guys. Wish I'd not left and could still be of help. After all I did like feeding Loki with the tube and all. There is no one who knows better that after rains comes sunshine, than someone from Holland. But that unlu unluckily is not of any help now. Miss you so much and wish I could help. Love and take care, frits

Elaine Stiles said...

Aye yay yay, Mom & Dad. I just got caught up with the past week, and am so sorry you have had so many struggles. I know that feeling of wondering when things will stop, or even slow down, for a moment so you can get back on your feet. This is such a tough time of year with illnesses. M & M have been getting one cold after another, though thankfully nothing too serious yet. Rob did got the flu earlier this week, too, but is doing well with it. If I wasn't exposed to everything with our kids/Rob, I would offer to come over in a heartbeat to help. If there's anything we can do from afar besides offer moral support and sympathy, (groceries? a hot meal? angry letters to the GI device manufacturers?) please let us know. E, R, M&M

Mascha Rodeck said...

You already DID make it through the first year. But I guess that is of no consolation right now. Just making bad jokes here.

Oh, my, I can't believe what you have to go through. I have no words of wisdom to offer, and I can't come over and help b/c a preschool friend of Anna's had swine flu. This is not a good time of the year to have somebody with a week immune system and so much to fight with already.

How I hope this will get easier rather sooner than later, and you can get some decent sleep.

I can only send virtual hugs and kisses.

Selena said...

I'm sorry I didn't know. I knew I was missing something when I saw Jesse's comment on FB! What a bummer!!

I send a virtual hug to all of you!
Selena

Cheryl said...

Yikes! Have they tested Loki for H1N1? It would be nice to know if he has it or not...I'm so sorry Loki has lost his bounce temporarily...the stupid broken g-tube surely isn't helping. Sounds like dad is going crazy having to stay away and worry, mom is going crazy with all this on her shoulders, and Loki is ready for a break, too...I'm so sorry, guys! The sun will shine again, but that doesn't help right now.

Circe said...

Och, lieverds daar! Met een gevoel van machteloosheid wil ik jullie kracht en sterkte toewensen. Ik steek een lichtje aan. Voor jullie. De donkere dagen van het jaar moeten niet te letterlijk worden, verdorie! Veel liefs, ook van Richard en kinders, Circe.

Suzan said...

Lieve mom, dad & Loki,

Wat een ellende... Heel heel heel veel sterkte!

Liefs,
Johan, Suzan en Phileine

marieke said...

Lieve, lieve mom, dad, oma and little Loki,
What a shit time this is! It is good to show your frustration, anger, sadness etc. Dear mom, keep the heart under the belt I gave you yesterday by phone ok? (I know, in english this sentence sounds like nothing.) Dear dad, the 6 words you wrote are full of feelings, great you still don't feel sick!
It sounds like a never ending story.......I wish I could come over in a second, help out and do that every minute when necessary. But, timemachines don't exist....
Lots and lots of healthy hugs, vibes etc. Marieke and Martin

Naomi en Stefan said...

We denken aan jullie!

About Loki Sky

Loki Sky is a special little man. He was a very early micropreemie, weighing only 610 grams (1 lb, 5 oz) after 24 weeks, 3 days gestation, born to an American Father and a Dutch Mother in Berkeley, California on October 18, 2008.

On January 11, 2009, while still in the hospital NICU, his one kidney stopped working. It was repaired after three surgeries. After spending time in three hospitals in three cities, Loki came home on February 17. He struggled with eating, and then stopped in July, leading to 8 days in the hospital, a failure-to-thrive diagnosis, and a NG feeding tube. On October 10, a minor surgery installed a G feeding tube. Another procedure replaced it with a new one, and then again with a Mic-Key button in Jan. 2010.

In August 2010, he and his parents moved to the Netherlands.

Read about his first name.
Read & hear about his middle name.
See photos.
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