Tuesday, March 10, 2009

Eating (photos)

Loki is eating a little more. At the 9:00 pm feeding yesterday, he ate a whooping 104 mls. This is usually the hardest feeding of the day, so Dad and I were hardly believing the energy with which he put back all that yummy food. Unfortunately most of the "more" is still by bottle. It is still quite a struggle to convince the little guy that eating by breast has many, many extra benefits. For example, it is always available at the right temperature and it is easier to gage how much he gets. Oh well. Hopefully continued practice will pay off.

The good news: he gained ten ounces in eight days, as per doctor scale. He weighs in at 8 pound 5 ounces. Although still looking tiny, the fat is finally starting to move to other places than cheeks and hands. Maybe soon he will fit some of his cute 0-3 months outfit, rather then disappearing in them.

Since he fits in the Baby Bjorn carrier, going out for walks is a much easier and very pleasant undertaking. Loki wears an outdoor jumpsuit over his clothes, goes in the carrier and voila, ready to explore the neighborhood. However, he usually falls asleep even before I hit the sidewalk. I guess I am the one doing the exploring. I see the little parks in the area where we will go to play when Loki is a little bigger. Sometimes I show Loki his first home, a.k.a. Alta Bates (from the outside, that is) and just enjoy being outdoors with my handsome little dude tagging along.

Over the past few days, Loki has surprised us with some pretty fancy head and neck control. This is not uncommon for former preemies, as they have spent more time on their tummy fighting gravity then typical babies, by the time they hit 45 weeks. However, in some of the other areas Loki needs a little extra support to catch up, even with his corrected age of 5 weeks. I am not too worried about this, as I have spent most of the past 7 years working with children like Loki. It may be hard to understand though, when you see Loki for the years to come and wonder why he does not talk or walk like most kids his age.

For those who wonder, Loki's age is corrected to how old he would have been right now if born on his due date, which was February 4th. Although his chronological age is almost 5 months, his development is more comparable to that of a five week old baby. With a few exceptions. It can take many years for him to catch up on his milestones in all developmental domains: gross and fine motor development, language and cognitive development and social-emotional as well as self help (potty training, feeding, sleeping, hygiene) development. We will be seeing someone from the Regional Center of the East Bay (RCEB) to determine what home based services Loki qualifies for, in order to support his development in those above mentioned domains of developme nt. It has been somewhat odd talking to them. RCEB is the agency I have worked with as an infant development specialist and as the manager for Baby Builders. We will get to know them from another angle. I know the wonderful staff there and am very excited that they will be the ones helping our little guy!

So far, we are pretty impressed with the strength Loki has exhibited throughout those first five months. He is determined, and I am sure we will see this when working on all the fun developmental tasks he gets to concur.

Sleeping on Opa Ruud's and Oma Anna's wooly:

I am a wizard, you are under my spell:


Too sleepy to lift my head up and see my pretty face:


Cuddling is also very nice with tante Marieke:


Want booby:

7 comments:

berkeleygal77 said...

3 1/2 ounces?!? Woohoo! That is great! And 8 lbs,+5oz is really good, too. Also, never underestimate what your son might be able to do when older - yes, he runs a chance of having delays in his development and you know that better than most. HOWEVER, there are babies that surprise us with their mental and physical strength and their general development. I refuse to predict either way how ANY baby will be more than 6 month in the future, much less for a baby I've actually met. Anyone who tries to tell you how he'll be 1 year from now is predicting too far in the future. Enjoy him as he is, and know he'll do great things.

Kyra said...

He mommy,

It is so wonderful to read that you finally get to do all the fun stuff with Loki. (and get to use all the merchandise that comes with it!!Can't wait until another babyclothes swap with you) And with his perfect timing, you will have a loooong spring and summer to go outdoors with him! It must be a relief that Loki gets the hang of eating (although I prefer the word drinking, my mother has had a hard time with me correcting her, as if Muus actually could stick a fork in my breast and eat!) I have some great pictures of our kids and am wondering if I should start their blog again, even though we are extremely busy right now.

Well, Lova is making jokes on the floor for Loki, enjoy the little baby time and the love of your sister around you.


Kyra

Anonymous said...

Hey guys it's long lost Amber...sorry its been so long I am feeling better and i hope next week I can come visit because I miss the big boy!!! I am so excited that he is gaining weight 8 lbs 5 oz is awesome...keep up the strong work Loki I miss you all very much and hope you are all well give the little guys big hugs for me!

xoxo,
Nurse Amber

Anonymous said...

we've all been sick over here, and so I've hadto postpone our in person introduction and hot meal delivery. It's coming, I promise!
I do want you to know, Kathalijn, that not only did Brianna, who had so many issues to face, NOT qualify for RCEB services, but her Preschool Weschler Composite was 93%, with a language score of 97%! And self help is now age appropriate except for the swallowing of liquids--she does 20 piece puzzles, can draw many letters, identify almost all, makes faces in her drawings--so do NOT underestimate the power of your love and care. So--I post this as a testament to the power of early intervention, to your skill and willingness to fight for a child who wasn't even yours to ensure her situation was communicated to those "in power", and to all your help and advice. Loki couldn't have a more ideal "early interventionist"--his Mommy and Daddy! And take ALL the help you can get--but never hesitate to just take time to be a normal little family.
Love,
Cheryl and Brianna.

Janet said...

Love, love, love the wizard photo. And Loki definitely has a lot of people under his spell! Knuffels to my boy.
Love,
Nurse Janet

fransje melief said...

What a treat to see these pictures! His eyes look more and more clear, healthy and focused every time I log on to the blog. Can't wait to squeeze the little guy without a computer screen in between.

Love, Fransje.

Mom said...

Janet,

I am having text message issues! Just making sure you did get my responses to your messages? Would love to see you and Annette sometime after upcoming week! So fun to see your picture!

And Cheryl, thanks so much for your message as well! I can imagine how proud you are of Brianna's amazing development!

About Loki Sky

Loki Sky is a special little man. He was a very early micropreemie, weighing only 610 grams (1 lb, 5 oz) after 24 weeks, 3 days gestation, born to an American Father and a Dutch Mother in Berkeley, California on October 18, 2008.

On January 11, 2009, while still in the hospital NICU, his one kidney stopped working. It was repaired after three surgeries. After spending time in three hospitals in three cities, Loki came home on February 17. He struggled with eating, and then stopped in July, leading to 8 days in the hospital, a failure-to-thrive diagnosis, and a NG feeding tube. On October 10, a minor surgery installed a G feeding tube. Another procedure replaced it with a new one, and then again with a Mic-Key button in Jan. 2010.

In August 2010, he and his parents moved to the Netherlands.

Read about his first name.
Read & hear about his middle name.
See photos.
See videos.

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