Friday, April 3, 2009

Hospital, Day 2, with photos

Although we are very satisfied with the medical care at UCSF, our experience during recovery in the regular children's rooms is a bit difficult. In particular, there is almost nonstop noise and interruptions. Even overnight, when Mom tried to sleep on the pull-out chair-into-bed next to Loki's bed, something was always going on. A nurse coming in or out, checking on Loki, or on our roommate. We've had three roommates in 24 hours, and each one was moved in and out, with doctors, nurses, and family in tow. Roommates' families would talk loudly, or have the TV on. Each roommate's bed change required cleaning staff to come in and out at least ten times. Many of the visitors would leave the door open, while it was very noisy in the hallways. (Of course, the floors were being waxed today as well.) Earlier today, the door would open about every minute or two. And Loki's monitor could never get a good signal, resulting in loud, constant beeping.

So, Mom was unable to get any real sleep, either overnight or during the day. I don't mean to complain too much. The medical care is what matters most. But this situation wears Mom down.

Anyway, Loki is doing well. He has had a couple regular feedings, and his catheter is out. We are trying to figure out when he will be discharged - today or tomorrow - or even when that will be decided.

For now, I must go home and meet Oma and Opa there. Mom will be staying with Loki, of course. Hopefully she can get some good sleep soon.

Loki imitated my tongue-out face:


Mom and her favorite dude:


Oh, why am I in a hospital again?!?! At least I have Musical Bear:


This is from yesterday, at home:

10 comments:

Unknown said...

Loki looks so good to be just one day post-op. I am so glad he has done well. And Mom - when you get the little dude home, let Oma and Opa spoil him while you get some sleep. That's what grandmas and grandpas are for! We love you and and miss you all very much. Hugs and kisses...Nana and Papaw Mark.

Anonymous said...

what great news. loki is such a strong little dude! he looks great. hopefully, loki and mom will be able to come home soon and get some proper sleep! i'm happy to hear that Oma and Opa are home there w/ you. what a treat! i'm sending recovery vibes to loki! thanks for the update. much love, courtney

Janet said...

Glad to hear that Loki sailed through the procedure;what a feisty boy he continues to be! Looking forward to making a visit soon.
Love,
Nurse Janet.
ps: Don't forget to give some knuffels to my boy for me :)

Unknown said...

Loki, you look so big and healthy! I'm so glad your surgery is over--now you can really settle into home...Dad, that boy is gonna get even for that penis shot, but I did enjoy seeing the chubby thighs...and I have one of my son in the bath when he "discovered" an interesting body part and is holding it with obvious delight--so I have no room to talk! And yes, you are a hip, good looking young family. And is that hair I see sprouting back in? Your son is so beautiful...
My news--Brianna passed her swallow study! The report (by Donna Diseroad, states "Brianna's swallow is now normal"! BTW--her son and his wife have a micropreemie, now about four months old, born at 24 weeks...
all my love,
Cheryl

Kyra said...

Hey guys, hang in there! I won't tell you you look tired, you may feel even more so. Well, I'll try to get a blog post up myself soon but the building news was very negative. However, it all seems so futile compared to your troubles. This morning our cleaning lady came with the good news she finally got a house after 8 years in the AZC, so this makes me feel much better. Well, all very much off topic, but maybe it'll give you some distraction from all the noise. I have always been so amazed that the places where people are supposed to heal are probably the most disturbed, noisy and uncomfortable places (no, I'm NOT negative). Enough from the negative dude. Stay positive dudes!

xx Kyra

marieke said...

Well, even I feel like disturbed again with this hospital-night-story. But fast I had the thoughts about Loki doing so well and going home very soon. Safe and sound in his own bed and with no noise at all. Great that oma and opa are with you from now on. I'm sure they like to cuddle up with Look and feed him as much as I did!

Loki-doki, this was your last hospital visit. Big hug, tante Marieke

Richard en Maaike said...

Jee, wat zie Loki er goed uit. En Jesse ook trouwens op de onderste foto. Ik sluit me helemaal bij Kyra aan. Die kleintjes hebben rust e regelmaat nodig lijkt mij, ook in het ziekenhuis. En dat je zelf ook neit tot rust komt, maakt het wel erg zwaar. Ik hoop dat Loki inmiddels thuis is en dat de stijgende lijn weer volop voortgezet wordt. En dat er ook maar een stijgende lijn mag zitten in jullie slaapuren, en een aflopende lijn wat betreft voedingsuren (waarmee ik me inbeeld dat dit betekent dat het dan beter gaat). Veel liefs, Maaike

Circe said...

Lieve Lijn en Jesse,

Een voorspoedig herstel voor Loki gewenst en hopelijk snel terug naar jullie eigen rustiger thuis bestaan. Veel liefs, Circe

Suzan said...

Lieve Lijn, Jesse en Loki,

Eindelijk is die operatie voorbij. Sinds het twins bericht heb ik geen e-mail meer gehad met nieuws. Daarom vroeg ik me aldoor al af wanneer de operatie nou zou zijn. En nu is ie al voorbij. Hopelijk zijn jullie snel weer thuis en gaat alles goed! Wat ziet ie er ondanks alles toch vrolijk uit zeg! Wij wensen jullie nu heel veel rust toe en tijd om met elkaar van elkaar te genieten.

Heel veel liefs en goeie wensen,

Suzan, Johan en Phileine

Anonymous said...

I am soooo happy to hear that the surgery went well!!! Hopefully this will be the last stay at a hospital for you all. And as always he is looking sooooo extremely adorable I can't get over it, he is the cutest ever! Thinking of you guys always!

XOXOX
Amber

About Loki Sky

Loki Sky is a special little man. He was a very early micropreemie, weighing only 610 grams (1 lb, 5 oz) after 24 weeks, 3 days gestation, born to an American Father and a Dutch Mother in Berkeley, California on October 18, 2008.

On January 11, 2009, while still in the hospital NICU, his one kidney stopped working. It was repaired after three surgeries. After spending time in three hospitals in three cities, Loki came home on February 17. He struggled with eating, and then stopped in July, leading to 8 days in the hospital, a failure-to-thrive diagnosis, and a NG feeding tube. On October 10, a minor surgery installed a G feeding tube. Another procedure replaced it with a new one, and then again with a Mic-Key button in Jan. 2010.

In August 2010, he and his parents moved to the Netherlands.

Read about his first name.
Read & hear about his middle name.
See photos.
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