Monday, April 6, 2009

Walk

The weather continues to be wonderful here, so any chance we get we take a little walk. Since Opa and Oma are here right now, we have a few more minutes now and then to step out. It feels great!

Today we met Loki's new friend Eben. He was born on Loki's due date and is a handsome little fellow. He is the son of our friends Noah and Elizabeth. As we are unable to have children visit our home, we met infront of our house and went for a little walk, while remaining a safe distance. It was fun being able to exchange newborn stories, ups and downs, and realize that some of Loki's behavior now is just typical baby stuff.

Eating has been a little better past two feedings. We were getting very worried about the lack of interest in food, and ability to eat well. He ate 30 or 40 ml's instead of 70 for most of the feedings. Because of his one kidney this obviously poses the risk of dehydration. Hopefully we are on an upward trajectory. Although of course development is never a straight line. More up then down is desired! That needs no explanation!

2 comments:

Kyra said...

Haai,

Tis ook allemaal niet niks. Goed gedaan, Loki. Maar wat een hoop kleine en grote zorgjes! Blijf maar stapjes nemen, van nu af kun je al je energie stoppen in baby zijn en willen drinken!

X kier

marieke said...

Hallo mijn lieve kleine neefje aan de andere kant van de grote wereld,
Wat heerlijk dat je met mama en papa en natuurlijk oma en opa kunt wandelen met dit mooie weer!
Nou ben je weer in het ziekenhuis geweest en heb je nu minder zin om te drinken? Ik hoop dat je weer snel lekker je fles of de borst leeg kunt drinken en hard gaat groeien. Ook al ben je zoooo schattig zo klein, groter worden is heel belangrijk hoor.
Dikke knuffel van je tante (die alweer nadenkt over naar je toe komen in het najaar......)X

About Loki Sky

Loki Sky is a special little man. He was a very early micropreemie, weighing only 610 grams (1 lb, 5 oz) after 24 weeks, 3 days gestation, born to an American Father and a Dutch Mother in Berkeley, California on October 18, 2008.

On January 11, 2009, while still in the hospital NICU, his one kidney stopped working. It was repaired after three surgeries. After spending time in three hospitals in three cities, Loki came home on February 17. He struggled with eating, and then stopped in July, leading to 8 days in the hospital, a failure-to-thrive diagnosis, and a NG feeding tube. On October 10, a minor surgery installed a G feeding tube. Another procedure replaced it with a new one, and then again with a Mic-Key button in Jan. 2010.

In August 2010, he and his parents moved to the Netherlands.

Read about his first name.
Read & hear about his middle name.
See photos.
See videos.

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