Scattered updates (photo, video)

I survived taking care of Loki by myself for 2.5 days while Mom, Rebecca, and Kyra went to Disneyland. (Nurse Margaret also went, as did Emma and Finn). It was tiring and a lot of work, but I learned a few things and gained quite a bit of confidence.

Our new system of feeding Loki continues to go generally well. He gets more calories and water, vomits less, has less reflux, and doesn't require overnight feeding. That last point is important for three reasons: overnight feeds can interfere with his brain "learning" how to eat properly; we must wake to start and stop them; and they cause him to be fussy.

The overnight fussiness hasn't stopped, however. Since Mom returned, Loki has had some extremely fussy periods at night. We think he is having difficult dreams, as stops once woken. He is likely processing her absence and the day in the hospital. (The former may have been worse as Mom both left and returned while Loki was asleep.)

Loki continues to develop in other ways. He is clapping and beginning to make a few signs, such as "more," "food," "all done," and "turn that lamp on and off, please."

After an eating session with Dad. Have you seen my straw?

Sleepy with Dad:

With Mom after a bath:

With Kyra:

With Rebecca:

Nurse Margaret and Mom at Disney:

The old button, with gunk and red skin from all the taping:

With Dr. Rhee at UCSF:

New Mic-key button and tube. The tube slides easily in (and out) when the short lines on each are aligned. The tube is then rotated 3/4 of a turn to keep it in. The side "BAL" valve is where water is put in (or out) to inflate or deflate the little balloon on the inside that keeps the button fixed in Loki's belly.

A gift from the UCSF Children's Hospital:

In this short video, Loki shows his new dancing style of swaying side-to-side.