Friday, May 22, 2009

Feeding, yes again feeding

Wow, how often can one write about food, eating, feeding, being fed, drinking, breastfeeding, milk etc. Apparently many times. Because, and I apologize, I will write about Loki's feeding struggles once again.

Hooray, Loki is fully breastfed. I am very proud of this and hopeful that we will make it through next winter. However, also breastfeeding is not comfortable to Loki. Approximately 1/3 of the time he really enjoys snuggling up, suckling and getting his tummy filled. Unfortunately the remaining 2/3 is drama. Or I should say DRAMA with all capitals. Loki has reflux, or at least that is what we think. Thus, he has a lot of pain and discomfort during most of his feeds. He sees the breast, is excited, opens his mouth, starts suckling and all of a sudden cries, arches his back, kicks his legs etc. This pattern happens again and again and again. He spits up, fortunately not that much, and throughout the day we constantly hear him swallow away whatever just came up. Since we are still on a 10-11 time/day feeding schedule, I spent a lot of time with a grumpy little guy. Finally today I gave up and just gave him a bath instead. More relaxing for both of us.

It is sad and frustrating to see him go through this. Wanting to feed my baby is such a primal and basic feeling. I want him to enjoy food as much as I do and I want him to have a positive association with breastfeeding. Oh, and of course I would like to see him gain weight. He did, but only 2 ounces (60 grams) in 11 days. This made him drop from the 25th to the 5th percentile on the preemie weight chart. This means 95% of preemie boys are larger than he is at this age. That is not good news. If he keeps dropping, and cannot stabilize, a feeding tube will not be out of the question. However, too early to worry.

We are trying a new medicine since Tuesday, but so far no luck. On one of the preemie sites I heard though that Prevacid can take a while to start working. In addition we started with rice cereal right before a breastfeed. The problem here is that Loki starts crying when he sees the bottle (smart guy, recognizes the bottle), refuses to swallow when given with a syringe and is not quite mature enough to get it with a spoon. The idea is great though, the thicker liquid is harder to spit up and the rice cereal will neutralize the stomach acid. I just keep offering it to him several times a day hoping that soon Loki will pick a preferred method and enjoy the new food.

On a happier note, Auntie Emma (my friend) stopped by with yummy, yummy food and a set of good books for Loki, from Finnie, including finger puppets. It was wonderful to see her and Loki was all smiles for her. Little flirt he is!!! (photos follow)

5 comments:

Frits and Heleen said...

he little big loki, if you keep on trying as hard as your mom and dad you'll soon be BIG LOKI. So kid, keep on trying. And mom and dad: it's so great to hear that you guys keep on trying with all the love in the world for this little big guy. Keep on going like this. Lots of love, frits and heleen

marieke said...

I think Loki has the best mom and dad in the world! I realy hope Loki starts eating the rice cereal. Doesn't matter if it is from a bottle, spoon or syringe. And...there is the check out on june 18th for his digestive system or not? We keep on wishing you good luck with this and don't appolagize for bringing it up ok?
Mom, i will check out the i-net for a great breastfeeding dress!
Dikke kus en Loki is the most beautifull little hunk...

Mascha said...

My Dear. I am so sorry to see you growing more and more frustrated. Anna was actually improving a bit on Prevacid, though not entirely. She had more of a problem with larger gulps of liquid, and it was very much depending on her body position. Do you see differences in Loki's reflux when he nurses upright compared to laying down? Have you tried different bottle nipples? Or the tube you can tape on your boob to trick him into thinking he is nursing instead of a syringe? I really hope the swallow study will give you some answers.

Lots of empathy and love.

Richard en Maaike said...

We denken aan jullie hoor!
x Maaike

Anonymous said...

dear jesse and kathalijne,

what a great suprise and what al lovely geboortekaartje, picture and note all the way from the States! Thank you so much. Now Loki is not only to be seen on the pc but also on our closetdoors (where all the other geboortekaartjes are). Take care, we hope Loki will eat more, haves less pain and enjoys: maybe there is a small "bougondier" in him some where... let's hope so!
thomas annette mirre and jette

About Loki Sky

Loki Sky is a special little man. He was a very early micropreemie, weighing only 610 grams (1 lb, 5 oz) after 24 weeks, 3 days gestation, born to an American Father and a Dutch Mother in Berkeley, California on October 18, 2008.

On January 11, 2009, while still in the hospital NICU, his one kidney stopped working. It was repaired after three surgeries. After spending time in three hospitals in three cities, Loki came home on February 17. He struggled with eating, and then stopped in July, leading to 8 days in the hospital, a failure-to-thrive diagnosis, and a NG feeding tube. On October 10, a minor surgery installed a G feeding tube. Another procedure replaced it with a new one, and then again with a Mic-Key button in Jan. 2010.

In August 2010, he and his parents moved to the Netherlands.

Read about his first name.
Read & hear about his middle name.
See photos.
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