Monday, May 4, 2009

Updates and Explosions

Loki, daddy and I (mommy) were sleeping in on Sunday morning. Sleeping in basically means hanging out in bed with some coffee, bread and the little guy happily looking around. Just being lazy is so lovely. Dad was playing a fun game with Loki, where Loki was being rocked back and forth on dad's bare stomach while daddy would enthusiastically exclaim "wheeeeee, wheeeee." Both men were enjoying the game until it was time to hand the little guy back to me for food. Dad moved his hands up and noticed a dark brown, wet, warm and oozing substance sticking to his hands. YIKES!!!

Loki had not been able to poop on his own for a while. Around 5:00 am I massaged his belly, put a warm pack on it and went back to bed after some milk. Well, dad's enjoyable game obviously helped Loki with his regularity. BIG TIME!!!

For those who dare, here is a picture! click here.

This past Monday Loki had a renal ultrasound after which he was seen by his Urologist Dr. Baskin. The very good news from this visit is that Loki's kidney looks like a normal and healthy one. We won't have to come back for another year!!!!

Since Friday Loki is also drinking a bit better. It's with ups and downs and I (mom) am very nervous about being too excited, but he did gain 2 ounces (60 grams) between Thursday and Tuesday. Hopefully this Friday we'll see even more ounces packed on to his tiny body. Loki really enjoys drinking from the breast, but still has many episodes of arching back, most likely due to reflux, and crying. The bottle is less and less interesting to him and causes gagging. We can not give him much fortified milk this way, but we are hopeful he is still improving his titty tricks.

Loki gave a fantastic performance during his early intervention session today. He showed the very early signs of deliberately causing an action. Barbara, our wonderful E.I. seemed as excited as I was. It is so fun to see my own baby work through the skills that I have helped others with for so long. He pushed a button with his hand, then actually listened to the music he caused and did it again. Of course he does not have an understanding of cause and effect yet, but we could almost see his brain cells multiply. He is just amazing to me. Our genius even made a little table toy swirl around purposefully. He payed attention to toys he did not even seem to notice last week, tracking and remaining focused for very impressive lengths of time (like, more than a few seconds).

Anywho, just being a proud, doting mommy! In our pediatrician's words "delicious baby."

p.s. the cards are almost all written and we've started sending some out. Please be patient! Especially Dutchies. Yours will be sent by my mom, Oma, when she gets back to NL. She is BTW rocking our household as I feed our dude more or less non-stop. We will most likely not eat anymore after she leaves. Nor will we have toilet paper, somebody to pick up the phone, buy soy decaf latte or sew new pillow cases. The floors will be dusty and dirty, the couch covered in cat hair, and the dishes piling up. Oh well........

(Despite what is listed below, this was written by Mom)

6 comments:

Kyra said...

Wat een traktatie om Heleen in huis te hebben, zeg! Blijf volhouden, Loki gaat zo te zien erg vooruit. De spuitluier is het beste bewijs!

Jess, als je dit woord goed kunt uitspreken, ben je alvast geslaagd voor je inburgeringscursus.

Groetje,

Kyra

berkeleygal77 said...

Who ever thought a poop would be so exciting! And you know it's not true that you won't be fed or have toilet paper - there are a lot of us who would be more than happy to help on those areas!

Mascha said...

YUMMY!
The picture is awesome. Way to go, Loki!

marieke said...

Hey Ho lets go Loki! Great your kidney is healthy!!
Big hug, Marieke

Richard en Maaike said...

Getsiederrie Loki, haha! Maar goed, je bent het lekker kwijt.
Wat veel goed nieuws zeg. Een zorg minder over de nier, hiervoor een jaar geen bezoekjes aan het ziekenhuis, dat scheelt al. En ja, die ontwikkelingen: ook jij ervaart het Lijn, je staat erbij en kijkt ernaar. Het gebeurd allemal vor je er erg in hebt. Nooit geweten dat je zo trots kon zijn, toch?
Kus Maaike

Anonymous said...

LOL... that photo is SERIOUS blackmail material for those teen-age years!

About Loki Sky

Loki Sky is a special little man. He was a very early micropreemie, weighing only 610 grams (1 lb, 5 oz) after 24 weeks, 3 days gestation, born to an American Father and a Dutch Mother in Berkeley, California on October 18, 2008.

On January 11, 2009, while still in the hospital NICU, his one kidney stopped working. It was repaired after three surgeries. After spending time in three hospitals in three cities, Loki came home on February 17. He struggled with eating, and then stopped in July, leading to 8 days in the hospital, a failure-to-thrive diagnosis, and a NG feeding tube. On October 10, a minor surgery installed a G feeding tube. Another procedure replaced it with a new one, and then again with a Mic-Key button in Jan. 2010.

In August 2010, he and his parents moved to the Netherlands.

Read about his first name.
Read & hear about his middle name.
See photos.
See videos.

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