Monday, November 10, 2008

Day 22

Thank you all so much for the sweet thoughts and responses!

Loki is hanging in there despite the fact that they also discovered a yeast infection (which apparently takes longer to treat). He has been more stable today. His oxygen support is up significantly, but with that his bradies (slowing down of heart rate) and desats (lowering oxygen saturation) have been less frequent. This made sitting next to him and touching him with my hands less stressful than yesterday.

The infections are located in the PICC line. This means the line needs to come out, and for the upcoming week our little guy will have regular IV's going into a variety of body parts, as he receives his medicine and nutrition through these lines. The doctor warned us it would be a rough week for Loki, as he will be poked with needles a lot. Poor little guy. In the mean while, he truly is a trooper. His doctor said he is working his way through this "vigorously and feisty".

The good news; he gained weight, despite the fact that his little body is fighting these bugs. So we are proud and happy that he now weighs 856 grams, which is approaching 2 pounds, yey!!!

Loki tolerated being touched really well today; I was able to sit with him and have my hands on his little booty and tiny head without major desats, in fact, at times his saturation got significantly higher, a sign that he is happy. Loki is developing some extra fat under his chin, which almost makes him look chubby :-), very cute.

Hopefully tomorrow will be better than today, and the day after tomorrow better than tomorrow!!

Many thanks to all of you for your prayers and positive thoughts!

7 comments:

Unknown said...

Hello,
I've been reading all of the posts and the pics of you holding Loki are really beautiful. Sounds like things are looking up! You all have been in my thoughts and it really does seem like you have an amazing support network. Very cool.

Love to the both of you,
Selena

Anonymous said...

Dag lieverds,
Wat fijn om te lezen dat Loki gegroeid is, ondanks dat hij toch wel best ziek is nu. Wat geweldig dat hij zo goed reageert op de aanrakingen! We blijven positief!!
Kus Maaike, Richard en Flo

Suzan said...

Good luck mom, dad and Loki! You're all doing great! We are very proud of you!

Much much love and many sweet wishes,
Johan, Suzanna and Phileine (who really likes to play with you in a while Loki!

marieke said...

Lieve Loki,
Being poked by needles is no fun! I'm so proud of you and your mom and dad and oma.
They all love you so much. Your nurses and docters take so good care of you and you are fighting so hard that you even gaind weight, wouwie! Hold on little dude, kusje van je tante

Janet said...

Dear Lucky Loki,
That's my feisty boy; you keep up with your "feisty productions."
By the by, you seemed to be fillng up of your isolette when I looked in on you this morning(Nov 10). Tell your mom and dad to keep reading you that book...apparently its working!
Big hugs to you,
Nurse Janet

Anonymous said...

Fijn om te horen dat Loki ondanks alles groeit, en van de aanrakingen geniet! Arme kleine kerel, hoop dat hij die naalden allemaal snel weer vergeet. Maar met al jullie liefde lukt dat vast! Heel veel liefs, een dikke knuffel voor jullie, en een hele zachte voor Loki,
Steffi

Unknown said...

Hugs and positive thoughts to all! Little Loki will continue to amaze yet... Our love, Liz & Peter

About Loki Sky

Loki Sky is a special little man. He was a very early micropreemie, weighing only 610 grams (1 lb, 5 oz) after 24 weeks, 3 days gestation, born to an American Father and a Dutch Mother in Berkeley, California on October 18, 2008.

On January 11, 2009, while still in the hospital NICU, his one kidney stopped working. It was repaired after three surgeries. After spending time in three hospitals in three cities, Loki came home on February 17. He struggled with eating, and then stopped in July, leading to 8 days in the hospital, a failure-to-thrive diagnosis, and a NG feeding tube. On October 10, a minor surgery installed a G feeding tube. Another procedure replaced it with a new one, and then again with a Mic-Key button in Jan. 2010.

In August 2010, he and his parents moved to the Netherlands.

Read about his first name.
Read & hear about his middle name.
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