Wednesday, November 26, 2008

Day 38; Much better day

Today we were lucky, Loki and us. We had great nurses taking care of him, and that makes a huge difference. As you can see on the pictures he loves being swaddled. Although it is still searching for the right isolet temperature so he does not overheat, he is very calm and satisfied this way, except when he has pain in his tummy. He sometimes has a hard time processing his food; just like a big baby boy. He squirms, cries, turns bright red, squeezes his little cheeks with his hands and, if lucky, has a big poopy diaper. It is very hard to see him in so much discomfort and not be able to pick him up and comfort him. Usually it does not take too long before he passes whatever needs to be passed, and he is happily sucking away on his pacifier or feeding tube.

We also had a special visitor all the way from Wisconsin, with yummie, yummie Mexican food from a great restaurant in Alameda.

Loki reached a kilo, in fact he ways 1,016 grams today, hooray big boy! His IV is out, and the results of the Lumbar Puncture came back negative (no yeast infection traces found in his spinal fluid). He is done with all his anti biotics and in addition to fortified breastmilk he continues to receive vitamins, caffeine and now also some iron.

We continue to go for GROW!!

8 comments:

Anonymous said...

Ha lieve mensen,
wat heerlijk om weer goed nieuws te krijgen!
Vandaag heel lang met oma Heleen aan de telefoon gezeten en dat bracht jullie drietjes ook dichterbij.
Veel liefs,
Wopke en Judith

Anonymous said...

1 kilo - way to go Loki!!!!! what a milestone. and, to think his wt gain comes from mom's own milk - amazing!
xoxo
courtney

Janet said...

Hoorah! One kilo plus! Way to go, Loki! And I'm very happy re:lumbar puncture results and discontinuation of antibiotics:)
Also, now that Loki can tolerate the additon of Fer-in-sol(iron drops), he should have bigger increases in his hematocrit and hemoglobin..all the better for oxygenation. The infection setback kept Loki hanging around the launchpad, but now he's ready for lift-off. He should grow quickly now, as well as better tolerate feeds and stress.
Happy Thanksgiving Day to you all.I know that you have an extra bit (a one kilo bit!) to be thankful for this year.
A big hello to Nana, too.
Knuffels en kusjes voor jou, Loki.
Nurse Janet

Anonymous said...

It's so great for us here in the Netherlands to know that Loki has such a dedicated nurses as nurse Janet around him. We already knew that he has great parents!, but the professional care is also very important in this period. And this goes beyond professional. Every time I read nurse Janets comment I'm getting emotional. Mom an Dad you must be so lucky with the connection people feel with your son. As tiny as he is, he already has a lot of effect on people all over the world.
I'm very happy that Loki is doing so great.
Dikke kus, Maaike

Anonymous said...

lieve Kathalijn, wat gaat het goed met jullie kleine mannetje, mooi om het elke dag te lezen. In gedachte ben ik vaak bij jullie, liefs Greet

Unknown said...

After seeing the pictures below it is unbelievable how much he has filled out in the four weeks since I saw the little dude. He REALLY looks like Daddy Jesse when he smiles! Happy Thanksgiving to Nurse Janet who is an absolute angel. I think she has earned her place in heaven for sure. And thank you for being "surrogate nana" for me and keeping such a close eye on him. I am eternally thankful.
hugs and kisses to all...nana

Anonymous said...

Hey mom and dad,

What a good news, over a kilo!!!
We enjoy to see how Loki is doing much better.

Lots of love and kisses for Loki,
sister and brother in law of "opa Frits"

Huub and Paula

Unknown said...

Loki is looking stronger by the day!

Mike Clark

About Loki Sky

Loki Sky is a special little man. He was a very early micropreemie, weighing only 610 grams (1 lb, 5 oz) after 24 weeks, 3 days gestation, born to an American Father and a Dutch Mother in Berkeley, California on October 18, 2008.

On January 11, 2009, while still in the hospital NICU, his one kidney stopped working. It was repaired after three surgeries. After spending time in three hospitals in three cities, Loki came home on February 17. He struggled with eating, and then stopped in July, leading to 8 days in the hospital, a failure-to-thrive diagnosis, and a NG feeding tube. On October 10, a minor surgery installed a G feeding tube. Another procedure replaced it with a new one, and then again with a Mic-Key button in Jan. 2010.

In August 2010, he and his parents moved to the Netherlands.

Read about his first name.
Read & hear about his middle name.
See photos.
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