Sunday, November 30, 2008

Day 42: Six weeks old

Today, Loki is six weeks old. Overall, he continues to do fairly well. He is up to 1080 grams, or 2 lbs. 6 oz. His SiPAP remains on 15 cycles per minute, typically at 26% oxygen.

The other day, we learned that he has a moderate case of bronchopulmonary dysplasia (BPD), which is a fairly general term for damaged lungs. This was likely caused by the respirator, which he needed to breathe during his first four weeks out. The damaged lung tissue doesn't really heal, but healthy lung tissue will grow around. Thus, as he gets older, the portion of his lungs that is damaged will decrease. Most likely, he'll have stronger symptoms and need more care during his first couple years.

Although overall he is doing well, he just gave us quite a scare. All three of his vital signs - heart rate, breathing rate, and blood oxygen saturation - all dropped sharply at the same time. Patting his butt and rubbing his back didn't help enough. It turns out that his feeding tube had slipped out a bit, and was stimulating his vagus nerve, which is one of the main ones connecting the head and the chest. Such stimulation can cause all sorts of problems. The tube had to be pulled and put back in, which is not a huge deal. Nevertheless, it is not fun to see him like this.

You can see in the pictures how much he has grown and changed in appearance from his birth until now. But you can't see his behaviour. I've noticed that he seems to have much more coordination. He can better bring his hand to his face (where he likes it), and maybe try to take off his breathing mask. When lying on his tummy, he can lift himself up just a bit. Sometimes he lifts his head a bit. The biggest difference is in his eyes. Recently he began to blink, and they often look towards the source of sound. I suppose these little developments are among the joys of parenting.

4 comments:

marieke said...

Hoera! Loki 6 weeks old and still growing, gaining weight and developing. In the last pictures his eyes are brighter and it seems like he looks to something.
Please, more pictures?:-) Grote knuffel for mom and dad and a little one for little dude babyLokiSky.

Anonymous said...

Wow. Time flies. I am looking forward so much to our trip in feb. We will finally get to meet Loki in person (he will be 5 times as big as he is now). Even zonder geintjes, heel erg gefeliciteerd. I wish I had been there earlier, but this cannot be changed. I am happy for you and grateful that loki gives you so much confidence in his own development. He is telling a wonderful story of life. Big kisses for everybody from a snowy Leusden.

Kyra

Suzan said...

Dear mom, dad and Loki,

Phileine sure likes Loki, she can't get enough of looking at his pictures and she loves the ducks. She even gave Loki a kiss...
We wish you ever more moments of joy!

Many many many good wishes and love,
Johan, Suzanna and Phileine

Janet said...

Lieve Loki,
Happy Six Weeks! Thinking of you while in Carmel/Monterey. Do you think it would be alright with your mom and dad if i brought you back an otter? Maybe not...maybe just a postcard.
Knuffels to grow on.
Nurse Janet

About Loki Sky

Loki Sky is a special little man. He was a very early micropreemie, weighing only 610 grams (1 lb, 5 oz) after 24 weeks, 3 days gestation, born to an American Father and a Dutch Mother in Berkeley, California on October 18, 2008.

On January 11, 2009, while still in the hospital NICU, his one kidney stopped working. It was repaired after three surgeries. After spending time in three hospitals in three cities, Loki came home on February 17. He struggled with eating, and then stopped in July, leading to 8 days in the hospital, a failure-to-thrive diagnosis, and a NG feeding tube. On October 10, a minor surgery installed a G feeding tube. Another procedure replaced it with a new one, and then again with a Mic-Key button in Jan. 2010.

In August 2010, he and his parents moved to the Netherlands.

Read about his first name.
Read & hear about his middle name.
See photos.
See videos.

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