Wednesday, November 12, 2008

Day 24: Holding again

A very tired update from mom, as dad is with Loki in the NICU to wish him a good and calm night.

The highlight of the day was another kangaroo cuddle with Loki this afternoon, with help of Margaret (thank you again!!). It was so wonderful to be able to hold him again, snuggle together and connect with my beautiful baby. Although getting in and out of the incubator was a little rough on him, and he had a little bit of a desat and bradie when the ventilator tube disconnected (poor little boy needed to breath on his own), Loki did really, really well. Afterwards he needed much less oxygen support for a little while, which according the doctor and his nurses has everything to do with the fact that he feels happy from being held. Proud mommy. Hopefully dad soon will have a chance to hold Loki as well.

Overall Loki was a little less energetic today, but clearly getting over his infection. He had another blood transfusion, and our little pale guy turned bright red again! His platelets are still looking good and his blood culture (which shows infections) came back negative, so hopefully the infections are gone, or at least growing very, very slowly.

I am starting to get to know this little dudy better and better, which is very exciting. I am getting a better sense of what he needs and how he feels. Fortunately the staff very much believes in mothers' intuition, which makes me feel an important part of his team. They take my concerns seriously, and more than once have confirmed that I need to share my thoughts about how Loki is doing, as it may give them important information. It all adds to my admiration of Alta Bates NICU staff.

Have a good night, and I promise, soon more pictures!

5 comments:

Anonymous said...

Hey Lijn, just sending you some prayers and love girl, it was good talking to you today. be strong, that little one of your is a fighter! Love Ya Dee

Anonymous said...

Wow, 24 dagen already! And I bet he is look ing forward to hugging very much. Great to read how much he loves being with you, Mom, I also noticed on your face in the picture: this is that chemistry that no doctor or nurse can beat! Dad, your time will come, for sure. In the meantime, hug oma and each other. Lots of love, Kyra

marieke said...

Well done little Loki! And with being read out of nurse Janets nightbook you will grow huge, I'm sure. How great you were able to hold him again mom! So happy for you...
Big hug for Dad, mom and oma, little one for Loki

Anonymous said...

Dearest Kathalijn and Jesse,
How wonderful that you could hold Loki again.
Must be so emotional!!
Makes me cry, all the stories and the photo's.
So wonderful that he is getting better, I'm so glad!Im still chanting Nam-myoho-renge-kyo for him to give him the power to win!!!!I'm sure he will.
Hope to see him one day in the Netherlands, looking forward to that.
Lots of kisses from me and a careful huggy for baby Loki!
Also a hug and kiss for Heleen of course.
Liefs en veel sterkte van Karin.

Anonymous said...

Hi Kathalijn and Jesse,

Congratulations with your little, little man. We hope this little warrior will grow up to be a big, big boy. We are thinking of you all daily and wish you lots of strength,
Veel liefs van ons allemaal, ook voor oma en opa!
Wopke en Judith

About Loki Sky

Loki Sky is a special little man. He was a very early micropreemie, weighing only 610 grams (1 lb, 5 oz) after 24 weeks, 3 days gestation, born to an American Father and a Dutch Mother in Berkeley, California on October 18, 2008.

On January 11, 2009, while still in the hospital NICU, his one kidney stopped working. It was repaired after three surgeries. After spending time in three hospitals in three cities, Loki came home on February 17. He struggled with eating, and then stopped in July, leading to 8 days in the hospital, a failure-to-thrive diagnosis, and a NG feeding tube. On October 10, a minor surgery installed a G feeding tube. Another procedure replaced it with a new one, and then again with a Mic-Key button in Jan. 2010.

In August 2010, he and his parents moved to the Netherlands.

Read about his first name.
Read & hear about his middle name.
See photos.
See videos.

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