Saturday, November 1, 2008

Two Weeks! Details on murmur

Today Loki is two weeks old. The current concern is regarding his heart murmur. A murmur is an irregular sound, and is just a symptom. The actual problem is a patent ductus arteriosus (PDA). In this, a baby's ductus arteriosus fails to close. The duct is a short connection between the pulmonary artery (which sends blood to the lungs) and the aorta (which sends blood with oxygen to the body). With the duct still open, blood that shouldn't mix mixes, resulting in inefficient circulation.

This is first treated with a drug, indomethacin. This constricts the arteries, hopefully choking supply to the duct, which eventually dies off. Loki had a PDA earlier, and responded to the drug, but the duct seems to have reopened. The medical staff is trying three courses of indomethacin. He presently on his second course. The drug treatment works in about three-quarters of cases. If he fails to respond to the drug, the duct will be closed surgically. Apparently, in the range of preemie surgery, this is a fairly routine procedure. It is done in his normal room and takes only 20 minutes. Still, it is heart surgery on a tiny dude.

A consequence of the surgery would be that it will probably set him back somewhat. Loki will be weaker as he recovers, and will need the respirator. So the breathing tube will not be removed unless the drug works.

He is getting another blood transfusion today. I am hoping that this will make the drug more effective.

3 comments:

Janet said...

Just checking in on Loki from home on this very rainy Saturday. Happy 2 week B-day, little guy!
I hope the blood tx and the indometh do their work so that Loki can avoid surgery. If he does, however, require surgery, its great to know that it can be done right at the bedside without transport to an OR or another hospital.
Hugs to Loki to grow on. Mom and Dad stay warm and dry, please.
See you all on Monday.
Nurse Janet

marieke said...

Lieve Loki en mama en papa,
We are sitting here in Berg en Dal with crossed fingers!! Let the drug do its work and let Loki have a lot of powerrrrr.
Love, Marieke and Martin

Suzan said...

Dear Loki, mom and dad,

We're making wishes for you little Loki. We're wishing you to be here on Phileine's birthday party next year with us, as a healthy little boy.

Much love,
Johan, Suzanna and Phileine

About Loki Sky

Loki Sky is a special little man. He was a very early micropreemie, weighing only 610 grams (1 lb, 5 oz) after 24 weeks, 3 days gestation, born to an American Father and a Dutch Mother in Berkeley, California on October 18, 2008.

On January 11, 2009, while still in the hospital NICU, his one kidney stopped working. It was repaired after three surgeries. After spending time in three hospitals in three cities, Loki came home on February 17. He struggled with eating, and then stopped in July, leading to 8 days in the hospital, a failure-to-thrive diagnosis, and a NG feeding tube. On October 10, a minor surgery installed a G feeding tube. Another procedure replaced it with a new one, and then again with a Mic-Key button in Jan. 2010.

In August 2010, he and his parents moved to the Netherlands.

Read about his first name.
Read & hear about his middle name.
See photos.
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