Thursday, November 6, 2008

Our amazing support system

Here a quick post from Mom, finally, between pumping, napping, and, yes, taking a bath to deal with some soreness in the milk-makers. I would love to tell you about the craziness of the last weeks from my perspective (which for part of the time has been colored by some pretty nasty drugs), but need to keep it short.

Despite the shock of Loki coming into our lives so very, very early, I am so incredibly grateful for who he is. He is such a beautiful and sweet little person, and I cannot get enough of looking at him and touching his tiny body, while he is asleep in the isolet, or while he is attempting to look around. What a blessing it is to have this wonderful human being in our lives. Being his mommy is better than I would have ever imagined, despite the fact that the circumstances are far from ideal, and even very scary at times.

Also, I want to thank you all for the amazing support you have given. I am simply blown away by all the sweetness we are receiving consistently. I cannot tell how much that means to me. Even though you may not hear from me, I do very, very much appreciate every single attempt to communicate with us and help us out! Without this support it would be much more difficult moving through this difficult time.

Finally, I feel we owe a special thank you to the staff at Alta Bates Hospital. From the minute we entered the hospital, most staff has gone above and beyond amazing care! We are very happy with the devoted and wonderful care Loki is receiving at the NICU, and the support Dad and I are receiving on a daily basis as well. I walk in plenty of times feeling sad and overwhelmed; there is always a staff member asking how I am doing, and ready to listen. In addition, Loki's nurses are very, very skilled and impressive! Each nurse has her strengths and we are very happy to have the team we have. It is so hard to leave the hospital and say goodbye for the day, but knowing that he is in such good hands makes up for some of the pain. All nurses give this extra bit of attention to Loki or us, for example, by their enthusiasm about Loki's cuteness, giving advise on how to communicate with our little guy, leaving a nightly-night book, or making Dad his first birthday card from Loki. (shown below) (Dad's birthday was on crazy day three, and seeing the card with Loki's picture and his tiny handprints was a wonderful symbol of the best gift ever for him.)

Needless to say, this is a very challenging time with many ups and downs, but the extra care of all the people around us makes a difference! Thank you folks!

Book for Loki:



And a card for Dad:


8 comments:

fransje melief said...

Congratulations Mom, Dad & Loki, on Jesse's birthday - what a really nice design (the card)!! Much love and a birthday hug, Fransje.

marieke said...

This is a very large compliment for Loki's staff, out of the Netherlands. It is great mom, dad and Loki are in such good hands with you. Thanx so much for all the good care, moms sister, marieke
:-)))

Eric Rubin said...

ive been reading the blog and thinking of you guys often. we can't wait to see you three and meet the new addition. oscar is already talking about the pranks he and loki will plan together.

p.s. happy bday jesse!

Suzan said...

Wat een lief mannetje!
We are making a lot of wishes still. Much love en heel veel lieve wensen,
Suzan

Anonymous said...

How nice to hear from you, "mama 'lijn". I told Brianna that "lijn" had a little bitty baby boy to love, and she replied "Actually, that 'lijn is a very nice and sweet mommy--I think so!". Of course, she is right. Just know we are thinking about you and sending a hug. And yes, the staff at Alta Bates are fabulous--Bri spent her first two weeks there herself, and I had all of my children there. Thank you, NICU staff!
Love,
Cheryl

Anonymous said...

Lieve Lijn,
Fijn je verhaal te lezen! Zorg goed voor jezelf in deze intensieve tijd. Een grote en een kleine knuffel voor jou en je beide mannen.

Anonymous said...

Hi Loki, Lijn and Jesse. Yes I had a haard time in having to leave yesterday without having a last look and sharing of vibes with Loki, because the Alta Bates staff were still busy with him. But sharing knows no borders or boundaries. And yes, a jetlag has an advantage: I woke up in the middle of the night (after 2 hours of sleep) feeling fully awake, and taking 1 more loke at Loki and writing this comment. Love y'all!
Frits, a.k.a. opa.

Lisa said...

Congratulations on your baby! I'm so happy for you. It was very nice to hear from you. Make sure to do a lot of self care so you don't burn out with all this stress.
-Lisa Jaureguy

About Loki Sky

Loki Sky is a special little man. He was a very early micropreemie, weighing only 610 grams (1 lb, 5 oz) after 24 weeks, 3 days gestation, born to an American Father and a Dutch Mother in Berkeley, California on October 18, 2008.

On January 11, 2009, while still in the hospital NICU, his one kidney stopped working. It was repaired after three surgeries. After spending time in three hospitals in three cities, Loki came home on February 17. He struggled with eating, and then stopped in July, leading to 8 days in the hospital, a failure-to-thrive diagnosis, and a NG feeding tube. On October 10, a minor surgery installed a G feeding tube. Another procedure replaced it with a new one, and then again with a Mic-Key button in Jan. 2010.

In August 2010, he and his parents moved to the Netherlands.

Read about his first name.
Read & hear about his middle name.
See photos.
See videos.

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