Friday, December 19, 2008

Day 62; not feeling hunky dory

Loki did not feel well today. When I spoke with Margaret this morning, she explained he had been desatting and bradying and did not really recover from it as he usually does. When I came in around noon, he was being put back onto the CPAP machine. In addition, when suctioned he had quite a lot of secretion, which made Blanca and the Doctor suspect he may have a cold. It was very sad to see him all covered up with the mask again. It was even worse seeing him towards the end of the day when he started to behave very, very tired. He did not show his typical feistiness when being changed or when having his temperature taken.

Several tests were done and a chest x-ray was taken. The tests came back negative, which means Loki does not have RSV or influenza, which is a major relief. In addition, the chest x-ray showed no signs of pneumonia. However, it was very clear on the x-rays that he is not expanding his lungs far enough on the cannula. This can be explained by something as simple as exhaustion from breathing on the cannula, or indeed having a general cold. Although he behaved very tired and somewhat lethargic for a little bit at the end of Margaret's shift, he did not have more secretion as long as I was there. And when I called in at 10:00 pm, he was still doing well on 21% oxygen on the CPAP. Also, his somewhat high temp form earlier, may have been explained by wearing a warm t-shirt from the hospital. He did cool down and stay at an appropriate temperature after we kangarood.

What we are hoping for now is that all his signs just showed us he was tired from being on the nasal cannula and do not indicate any underlying issue. Although I signed up for a room at the NICU for an overnight, Blanca (his nurse practitioner), the doctor and his nurse Jenny ensured me he was doing alright. He was not retracting his chest and he did not show a "bopping" head which are signs of respiratory distress. So, I left with an okay feeling about the urgency, or lack thereof. That said, it was very difficult to see him feel so miserable and not being able to really help him.

Nevertheless, always scary to see Loki take a step back. But hopefully he is able to recover when sprinting on the nasal cannula as he is doing now with most of his time spend on the CPAP. With a little bit of luck we can plan the sprinting such that we can restart the recreational breastfeeding, as soon as he is up for it!

Unfortunately Dad does indeed have a viral cold. There is not much he can do except for waiting, sleeping, plenty of fluids and healthy food. According to our own doctor, he shouldn't be contagious anymore after 48 to 72 hours. Also for those who wonder, if Loki does have a cold, he did not get this from Dad. He has not really seen Loki except for those first 10 minutes after his trip, with the isolet closed, and I don't have it.

Please keep your fingers crossed and please keep Loki in your prayers. He needs a little extra support at the moment!

10 comments:

Anonymous said...

Lieve Kathalijn,

we denken extra aan jullie drie!
Denk ook aan jezelf en blijf vertrouwen op een goed verloop van dit alles.
Veel liefs,
Wopke en Judith

marieke said...

Dear Loki,
How sad! You don't feel completely well. Mom and dad are worried and you've got on the CPAP again. Maybe this gives you anough rest to recover completely. Hele grote knuffel voor mom and dad en voor jou een kleintje.

Dad said...

Loki, I am sad and sorry that I was unable to see you on your two month birthday. But I am feeling better, and I hope that you are too. I will visit soon, kleine mannetje.

Anonymous said...

Lots of love to you Loki from Indiana (and Monm and Dad too!). You are looking very handsome. And I want a warm looking hat like yours. Ihope you start feeling better today.

Uncle Brent

fransje melief said...

Dear Loki, I hope you will feel better soon. Everybody has a bad day sometimes, and you look handsome, even when you are sick, so don't worry! Mini-baby hug, Fransje.

Anonymous said...

Liefs en sterkte voor jullie!
met licht en warme gedachten van Circe.

Mascha said...

I am sorry to hear Loki is not feeling well. You must feel helpless not being able to do anything about it, and dad not even allowed to come visit him.
Hopefully he will recover soon with easier breathing on the CPAP. Set backs are hard, but when he comes out of them strong, it will be all the more delightful.
Love and hugs,
Mascha

Anonymous said...

wow--i take two weeks off for Brianna's surgery, a nd come back to see a great big boy! From my perspective, he looks so great even with a cold--he's a beautiful little boy and he has changed a lot in just a few weeks.

I will be in touch regarding Brianna. Very hard surgery, eight hours, brain surgery, so recovery is slow and difficult, but basically, like Loki, it is getting better each day even though we take one step forward and sometimes two steps backwards--healing is just not a straight line, but a dance back and forth.
Love, and get well soon, Loki, so your mama and papa can relax andget some sleep.
love,
cheryl

Suzan said...

We maken weer wensen voor jullie. En denken aan jullie.

Liefs,
Johan, Suzan en Phileine

Janet said...

Sorry you're not feeling well, Loki-doki! Get rid of that darn cold quickly.
Knuffels,
Nurse Janet

About Loki Sky

Loki Sky is a special little man. He was a very early micropreemie, weighing only 610 grams (1 lb, 5 oz) after 24 weeks, 3 days gestation, born to an American Father and a Dutch Mother in Berkeley, California on October 18, 2008.

On January 11, 2009, while still in the hospital NICU, his one kidney stopped working. It was repaired after three surgeries. After spending time in three hospitals in three cities, Loki came home on February 17. He struggled with eating, and then stopped in July, leading to 8 days in the hospital, a failure-to-thrive diagnosis, and a NG feeding tube. On October 10, a minor surgery installed a G feeding tube. Another procedure replaced it with a new one, and then again with a Mic-Key button in Jan. 2010.

In August 2010, he and his parents moved to the Netherlands.

Read about his first name.
Read & hear about his middle name.
See photos.
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