Monday, December 29, 2008

Morning of Day 70: No major updates

Sorry for the late post. No major updates today. We're just a little tired. We're trying to go through our house to get it all set up for when Loki comes home. We probably still have at least five weeks we estimate, but you never know of course. It is quite some work getting everything done because we need to create space in a not so spacious apartment.

Loki had a good day although he is learning to fuss like a big boy. He really likes to be held, and when he is put back into his crib he starts complaining. The musical bear that Stina gave him does wonders, because one of the songs seems to calm him down a little! Many thanks to her! It sounds a little bizar probably, but in a way the fussiness is almost pleasant at times. Not only does it provide us with some real baby experiences, we are now able to pick him up and sooth him. We can do something for him as his parents. Dad sat down with him for while during Loki's early evening feeding, and Loki was oh so comfortable.

Although our little guy is growing well and getting stronger and stronger, I would also like to emphasize that he is very fragile. It is easy to start seeing him as a regular, just small sized baby. He has lung damage though and this will continue to make him very sensitive for a few years. It is pretty daunting to realize that a small cold can turn into a major issue. We saw it with a baby here just recently. He was ready to go home on Christmas Eve, after having been at the NICU for 2.5 months. He got a cold, possibly from his grandma visiting, and is now back on the nasal cannula. His cold started almost three or four weeks ago, and he still needs the support. Obviously this is quite devastating for his family.

So, apologies if I continue to be a germ freak. I will be one for a quite a while though, and I will have to be unfortunately. I know a little cough or scratchy throat does not feel like a big deal to us, but it will be a serious deal for Loki. Please bare with us through these fragile years and please continue to use your best judgement when visiting us. We want our little dude home as soon, healthy, happy as possible.

1 comments:

marieke said...

Hey Ho lets go Loki! It's good to complain when mom and dad put you back after a nice cudlle and holding. It's not fair to put you in bed isn't it. But you know, one thing, you better accept moms boobie because the milk is so yummie! So, listen to tante Marieke, no complains against the breast please. Big hug because you're a big boy now, marieke

About Loki Sky

Loki Sky is a special little man. He was a very early micropreemie, weighing only 610 grams (1 lb, 5 oz) after 24 weeks, 3 days gestation, born to an American Father and a Dutch Mother in Berkeley, California on October 18, 2008.

On January 11, 2009, while still in the hospital NICU, his one kidney stopped working. It was repaired after three surgeries. After spending time in three hospitals in three cities, Loki came home on February 17. He struggled with eating, and then stopped in July, leading to 8 days in the hospital, a failure-to-thrive diagnosis, and a NG feeding tube. On October 10, a minor surgery installed a G feeding tube. Another procedure replaced it with a new one, and then again with a Mic-Key button in Jan. 2010.

In August 2010, he and his parents moved to the Netherlands.

Read about his first name.
Read & hear about his middle name.
See photos.
See videos.

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