Saturday, January 31, 2009

Cell Phone Issues

Quick note, I (mom) lost my cell phone yesterday. It may still be in the car somewhere, but since we do not have a working light in the car, I couldn't find it yesterday evening. Most of your phone numbers are on there and some of your messages. I am not too worried yet, but just as a warning, if you leave a text message, I may not see it too soon. If I indeed cannot find it, I'll post here again and ask you to email me your number. oops! (Message for JM, we are all set with food etc. Thank you so much for your offer!! )


On a more important note, Loki's surgery is confirmed for Monday the 9th at CHO, unless an opening pops up this week. There is a slight, slight chance Dr. Dissandro (I believe this is his name), the urologist, will have space and time on Wednesday. In this case we will indeed move to UCSF. We should find out more on Monday.....

Loki weighs 2900 grams, so over 6 American pounds. He is latching on better when breastfeeding, but unfortunately according to whatever measurement technique we use, he never gets more than approximately 10 ml's every feeding session. That is so hard to imagine, because he is sucking away so nicely. Oh well, we keep working on it!

He had a sponge bath and massage. He loves his little legs and back rubbed, got that from his mommy. Unfortunately he cannot have a real bath because of the nephrostomy tube, so no floating around in warm water. Fortunately the massage makes up for missing some of that.

Today was better with the particular nurse during the day. Thanks to all your sweet comments and Margaret's advise, I was able to take a different approach. During the evenings we have been lucky. Even though there is not much consistency, Loki has had great nurses. So, spending more time later in the evening and getting our little guy's room ready during the day is working okay for now. However, it does not feel the same as having our familiar friends at Alta Bates!

5 comments:

berkeleygal77 said...

Message received. Glad to know you're good on that front. Hope the surgery (eventually) goes well and that the dude recovers fast.

Anonymous said...

It must be good to know that at least in (allmost) one week the surgery will be done. This will be an "spannende" (how to translate??) period, with again worries about loki health, so I hope you can take some rest this week to prepare yourselves.
Good for you, that you good take an other approach to the nurse and that this did work out for you.
I'm happy you liked Richards design. Take your time to figure out the details.
Love, Maaike

marieke said...

Lieve Loki, I again bought you new rompertjes (another dutch word for the american people who want to practice their dutch. Ask mom the american word please.) from de HEMA. (popular dutch warehouse). Short and long sleeves. But....they are realy for a big boy. So if you grow something like 10-20 cm. you can ask mom and dad to dress you up with those. I will bring them in march so you can check them out. I cross all the fingers I have for your surgery, can you think about how this works out for my job? I will take a week off I think:-) Mom, you are so flexible. How great you found another way to deal with the situation. Margaret, I love you for the advise you give to my sister and dad in this situation!
X

marieke said...

And offcourse all great nurses from CHO, Thank you for the good care you give to my little nephew babylokisky!

Dad said...

Marieke: A rompertje is nicknamed a "onesie" because it is a single thing for top and bottom.

Maaike: I think "spannende" translates as "tense" or "stressful"

About Loki Sky

Loki Sky is a special little man. He was a very early micropreemie, weighing only 610 grams (1 lb, 5 oz) after 24 weeks, 3 days gestation, born to an American Father and a Dutch Mother in Berkeley, California on October 18, 2008.

On January 11, 2009, while still in the hospital NICU, his one kidney stopped working. It was repaired after three surgeries. After spending time in three hospitals in three cities, Loki came home on February 17. He struggled with eating, and then stopped in July, leading to 8 days in the hospital, a failure-to-thrive diagnosis, and a NG feeding tube. On October 10, a minor surgery installed a G feeding tube. Another procedure replaced it with a new one, and then again with a Mic-Key button in Jan. 2010.

In August 2010, he and his parents moved to the Netherlands.

Read about his first name.
Read & hear about his middle name.
See photos.
See videos.

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