Tuesday, January 13, 2009

Quick note from mom

First if all, I cannot describe in words how relieved I am about the surgery. We are not done yet with this scary, scary situation, but this step went well. The past few days have been incredibly difficult and I seriously felt like I had landed in hell. I was scared and worried when I was hospitalized myself and we were trying to keep Loki inside. This was even harder. I am so very much in love with this strong little boy, and seeing him go through so much pain and such a challenging situation is absolutely heartbreaking. Fortunately he seems to be doing okay right now.

Our departure from Alta Bates Nicu and its staff has been really hard as well. Never thought I would feel homesick to a hospital, but I believe that is how I would describe the situation. Obviously the doctors and specialists at Children's Hospital are amazing, but oh my oh my do I miss our wonderfully skilled and sweet support system at Alta Bates. Having had to leave so abruptly has shaken us up quite a bit. Fortunately the support from there has not stopped with Loki's transfer. I can't explain how grateful we are for this. Thank you, Thank you, Thank you to all of you.

Then, as a little treat today we opened the cards and gifts from the "Loki Blessing" today. WOW!! I am blown away by all the cards, gifts, letters and wonderful thoughts (I watched most of the videos and photos). We are so truly blessed with all the support and love that just keeps pouring in from everywhere. I believe this makes the difference in Loki's recovery and our ability to manage life as it presents itself to us these days. In adition, gifts, mail and comments on the block keep arriving from Holland and all over the US. Gee, what can I say? I know Ducth, English, some German and Turkish (Cok Gusel (sorry spelling is wrong)). But truly, I am speechless!

THANKS TO ALL AND BLESSINGS!!

8 comments:

Anonymous said...

Lieve Lijn,

Je verdient het. Alle andere mensen bedankt, thanks everyone, but I believe this is the One thing we can do. Keep up hope and attention for the three of you. Loki is our hero, and so are you!
Kier

Anonymous said...

What a relief that this first bump is taken with succes. Worries are not over yet, so we still keep Loki and the two of you in our minds.
X Maaike

Mascha said...

I feel very blessed that I am allowed to be a part of your life and this journey and that I was invited to be a part of the blessing ceremony of Loki Sky's birth.
And I will keep sending strength and love your way. I feel for you.
Mascha

Anonymous said...

Lieve Loki,
Wat ben je toch een kanjer! Ik denk dat je op je beide ouders lijkt!!! Wat een opluchting, we blijven duimen en wensen jullie nog maar weer heel veel kracht toe. Liefs, Willem en Edith.

marieke said...

Dear mom and dad,
I wish I could do more for you then sending comments! Come on, be strong (I knoe you both are very strong) and share your love with eachother and the cute, strong, little Loki dude.

Anonymous said...

Like Mascha above, I, too feel blessed to be experiencing this with all 3 of you. -Jennifer M.

Anonymous said...

Now take a deep breath, hug each other, and try to rest. This is a marathon, not a sprint, and you don't want to get sick. Everyone is with you, cheering Loki on, so he has a cushion of good energy all around him! Hang in there, the three of you.
Cheryl

Anonymous said...

hang in there mom, he is a fighter and even though there may be bumps on the road, he will find a way through it. Love you guys and I'm keeping a good thought for allof you.
Deanne

About Loki Sky

Loki Sky is a special little man. He was a very early micropreemie, weighing only 610 grams (1 lb, 5 oz) after 24 weeks, 3 days gestation, born to an American Father and a Dutch Mother in Berkeley, California on October 18, 2008.

On January 11, 2009, while still in the hospital NICU, his one kidney stopped working. It was repaired after three surgeries. After spending time in three hospitals in three cities, Loki came home on February 17. He struggled with eating, and then stopped in July, leading to 8 days in the hospital, a failure-to-thrive diagnosis, and a NG feeding tube. On October 10, a minor surgery installed a G feeding tube. Another procedure replaced it with a new one, and then again with a Mic-Key button in Jan. 2010.

In August 2010, he and his parents moved to the Netherlands.

Read about his first name.
Read & hear about his middle name.
See photos.
See videos.

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