Sunday, January 18, 2009

Something familiar

Loki's cannula came out. Dr. Uzowic was working at CHO today and it was so nice and familiar to have her make such a bold decision. We will see if he is able to sustain his rock steady saturation and heart beat. Although his breathing is much better than it was a few weeks ago, he does sometimes breathe fast and shallow. If he is able to stay off for approximately two or three days, I think we are more confident he is really able to do this, and not just using his reserves. Our little guy looks so handsome with only a tube in his nose (and all the wires and nephrostomy hanging on the bottom of course).

We had a great nurse during the evening (Libby). The nurse taking care of the babies next to us was Lisa's mom. Libby and Lisa's family have known each other for a long time, and since Lisa was one of our amazing primaries at Alta Bates this felt so much calmer then some of the days before. I asked her to be a primary, so hopefully we will see her again. Although Loki has had some nice nurses, he is seen by another person every shift. We have seen only two nurses two times. It is challenging to figure out how the assignments work (or who the the charge nurse is). Today I will try to find out a little bit more about that. It makes me a little nervous for people not to know him at all. There is no consistency for him, and one of the reasons the doctor's found out it was so sick was because of his primaries recognizing his changes so rapidly. Something tells me that if I am worried here, it will take quite a bit of convincing for them to do something about it.

Loki did pretty okay on the breast today. He only desatted two times (while receiving no oxygen) and he recovered very quickly with a little bit of help. He is a very eager sucker and I am very hopeful he will learn how to breastfeed. Just a little nervous whether he will get it down quick enough. So, practice, practice, practice. This means I am there at someone odd hours (with less sleep at night), as I do need a nap during the day in order to make sure I can produce enough milk.

7 comments:

marieke said...

Jeetje, die dokter toch! Wat fijn dat jullie een meer goed gevoel krijgen bij alles rondom Loki. Gelukkig hebben jullie ook te maken met fijne zusters. Ben heel benieuwd hoe Loki het doet zonder zuurstof zeg. Weer een grote stap dichter bij volgroeid zijn! Het is zo'n schatje...Kan natuurlijk ook niet anders met zo'n mama en papa!!
X

Anonymous said...

Yeah, this is more good news. Loki is improving great. And it's nice to hear that his environment is improving too! Keep on the good work. Make sure to get enough sleep, and everything wil turn out great! Oma Heleen and Opa Frits.

Anonymous said...

Lieve Kathalijn, gister met Kyra gebeld, ik ben nu aardig op de hoogte hoe het met jullie kleine mannetje is, ik zou zo graag even bij je om het hoekje kijken. kracht en liefs voor jullie drieën.
Greet

Anonymous said...

Hee zeg! Wat een geweldige stap in de goede richting. Ik sta perplex van de veerkracht want nog geen week geleden... je kent het verhaal. Loki, good job. Ik ben het helemaal met Maaike eens wat betreft jullie eigen kunnen. Jullie zijn zelf supernurses.

Love,

Kyra

Anonymous said...

Gefeliciteerd! Weer een grote stap in de goede richting! Ook al zijn jullie nu nog even voorzichtig, dit heb je al vast mooi in de pocket.
Fijn dat jullie ook in dit ziekenhuis langzaamaan wat goede mensen vinden.
Dikke kus, Maaike

Anonymous said...

Go Loki Go! You can do it!
Cheryl

Anonymous said...

I'm rooting and praying for Loki! As well as the rest of us here! He is always on our minds!
~Rhea

About Loki Sky

Loki Sky is a special little man. He was a very early micropreemie, weighing only 610 grams (1 lb, 5 oz) after 24 weeks, 3 days gestation, born to an American Father and a Dutch Mother in Berkeley, California on October 18, 2008.

On January 11, 2009, while still in the hospital NICU, his one kidney stopped working. It was repaired after three surgeries. After spending time in three hospitals in three cities, Loki came home on February 17. He struggled with eating, and then stopped in July, leading to 8 days in the hospital, a failure-to-thrive diagnosis, and a NG feeding tube. On October 10, a minor surgery installed a G feeding tube. Another procedure replaced it with a new one, and then again with a Mic-Key button in Jan. 2010.

In August 2010, he and his parents moved to the Netherlands.

Read about his first name.
Read & hear about his middle name.
See photos.
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