Loki's surgery will be next week, on Wednesday the 4th or Friday the 6th, most likely over at UCSF Children's Hospital in San Francisco. The surgeons will not know whether to perform a pyeloplasty or a cutaneous pyelostomy until they get inside.
Loki went up to 2700 grams today. That is about one ounce shy of 6 pounds.
His eyes were examined again, and his ROP is progressing mildly. Although not quite a step in the right direction, it is only a very slow step in the wrong direction. According to Dr. Tennenbaum that is a good sign at this point in time.
Nurse Blanca, who works at both Alta Bates, paid a surprise visit to Mom and Loki after a meeting. As a nurse practitioner, at Alta Bates she served as the consistent lead of the medical team, and something of an assistant to the neonatologist doctors, who were different every so many weeks. It's always good to see a familiar face!
Mom will try a new strategy with practicing breast feeding. Loki is fed every three hours, and she must synchronize her practice with that. But it seems he gets tired. So Mom will try to practice at every-other-feeding: 8 AM, 2 PM, and 8 PM. This may mean two or three trips from home to the hospital, and a long day overall. I am very impressed by her dedication.
Untitled (written 8/30/2008)
1 year ago
8 comments:
Could there be an any more dedicated mom in the world than you, Lijn?
I don'n think so, honestly. It's amazing what you do and I am sure Loki would not be as far as this without your persistant care. You defenately deserve heaven for this.
Bewonderenswaardig, echt waar!
Don't forget yourself, though. His wellbeing also depends on yours.
It's so great how your Alta Bates friends keep supporting you - super!
xxx Oma Heleen
Wat fijn dat het nu duidelijker is wanneer de operatie gaat plaatsvinden. Dat wordt natuurlijk weer erg spannend, maar daarna kun je weer toewerken naar iets heel moois: naar huis gaan!
Goed dat je iets anders probeert met de borstvoeding, omdat je je toch niet helemaal lekker voelde bij hoe het ging. Ik hoop dat je nu het gevoel krijgt dat dit een middenweg is tussen het schema van het ziekenhuis en Loki's en jouw wensen.
Kus Maaike
Lieve Kathalijn,
Kyra schreef het eerder al "wat een spannend boek" is kleine Loki. We leven hier heel erg met jullie mee. Ik heb veel bewondering voor jou en Jesse, er spreekt zoveel positiviteit uit jullie verhalen.
Het is goed om te lezen dat je, ondanks de belemmering van het ziekenhuis, dicht bij je idealen blijft. Wat geweldig dat Loki inmiddels ook al sterk genoeg is om regelmatig zelf aan de borst te drinken. Ik heb bij Sterre het idee dat de borstvoeding haar echt goed beschermde tegen ziektes. Zij heeft ook zelf besloten om, 3 dagen voor haar verjaardag, te stoppen.
We wensen jullie veel sterkte met alle komende medische ingrepen. Knuffel je kleine man maar goed, dat geeft hem kracht om door te vechten!
lieve groet,
Cindy
Sterkte en veel voorspoed bij de komende spannende ingrepen. En dat Lijn een lieve, toegewijde moeder is daarvan waren we al ruim overtuigd!
Good luck lieve Loki, mom and dad!!
I cross my fingers for you....
Dear Mom and Dad,
We will be right there to give all the support you need (away with the cold, I hope, it's getting better everyday!)
Love,
Kyra
Dedication? You both have that!!! A lot of dedication and love and strength! Amazing! Loki looks like he's doing good. I hope that the surgery goes well too. I send positive energy your way.
Selena
So, he might have surgery on his due date. Although this is a far cry from how you have envisioned this day, it will hopefully turn into a day where you can celebrate another success on his difficult journey. And once he wakes up from anesthesia, starting his recovery to be finally discharged home, you might as well feel like he was re-born.
All the best,
Mascha
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