Friday, January 23, 2009

Maybe UTI

Our little guy may have a UTI (urinary tract infection). We hope not, although we were warned that this is a common issue with the nephrosotomy tube. It would mean an increased dose of antibiotics though. Fingers crossed we can just hang out until the next surgery.

Loki is behaving pretty well. He loves being held and cuddled and has his few alert moments during the day, where he looks around to see what is going on. He is working very hard on breastfeeding and actually latches on quite well. It is unclear how much he takes in, but I guess that is a guess for every new mom. Unfortunately he does not have that extra reserve that newborns have, so it does matter he gets is full feeds.

Dr. Sandhu stopped by for a quick visit today, Loki feels honored with all his guests. We continue to miss Alta Bates, but are getting used to being at Children's. I would be very worried about how to make the different culture work for an extended period of time, but if it is just another week or so, we will be fine. I must say, we have had a wonderful evening nurse for a few days now, and the day nurse, whom we will have for the fourth day in a row, is really good as well.

Interesting though, despite the fact that we are at the more specialized Children's Hospital, nobody really knew how to take a urine sample from the nephrostomy tube. They needed a print out to make sure they were doing it right. Our nurse did a great job, but it says something about how uncommon this is. It does make me want to go to UCSF for the actual surgery, just to make sure we will have enough people who have seen the surgery happen and know what to expect. Even though yet another move and getting to know new people yet again, this time without knowing any of the doctors, will be quite an adjustment.

I have some weird anatomical issues, causing for the bizarly early birth of our little dudey. But I must admit that our baby boy wins the odd anatomical abnormalities circus! Geeee!!!

5 comments:

Anonymous said...

Yeah. Loki for sure is a big little fighter! Hats off!
Frits

Anonymous said...

Oeh wat spannend weer. We sturen weer wat extra positiviteit jullie kant op. Tot nu toe heeft Loki zijn naam eer aan gedaan, en ook nu zal hij er weer sterker uitkomen!
Hij is al zo groot geworden, dat is goed te zien op de foto met Margaret.
Kus Maaike

Suzan said...

We'll make wishes again for Loki's health. Good luck with all these bumps in the road. We wish your road gets very smooth soon!

Much love and sweet wishes,
Suzanna

Anonymous said...

Lieve Mom,

Gelukkig zijn jullie allebei wonderkinderen! Na de overgang naar CHO kun je alles aan, want je hebt er het allerbeste van gemaakt. Ik hoop je snel te spreken en natuurlijk te zien. Succes met alle spannende beslissingen en diagnoses. Loki is wel een heel spannend boek, moet ik zeggen...

Also a virtual kiss for dad.

xxKier

Mascha said...

Oh, no, not more antibiotics again. I totally understand your germ phobia and am feeling for you. It is extremely stressful to see them being so sick with RSV. I would also love to visit again, but it is prime time for germs in the preschools.

I can't express how much empathy I have for all of you, being so nervous about upcoming surgeries.

The really good development is that Loki is nursing better and more effectively. At AB they offer to weigh babies after every feeding for a while to know how much they take in. I guess, CHO NICU has no capacity for it.
But looking at the pictures, he appears to be a strong little fighter. You should be so proud of yourselves, as he takes most of the energy from your love and care.

Much love,
Mascha

About Loki Sky

Loki Sky is a special little man. He was a very early micropreemie, weighing only 610 grams (1 lb, 5 oz) after 24 weeks, 3 days gestation, born to an American Father and a Dutch Mother in Berkeley, California on October 18, 2008.

On January 11, 2009, while still in the hospital NICU, his one kidney stopped working. It was repaired after three surgeries. After spending time in three hospitals in three cities, Loki came home on February 17. He struggled with eating, and then stopped in July, leading to 8 days in the hospital, a failure-to-thrive diagnosis, and a NG feeding tube. On October 10, a minor surgery installed a G feeding tube. Another procedure replaced it with a new one, and then again with a Mic-Key button in Jan. 2010.

In August 2010, he and his parents moved to the Netherlands.

Read about his first name.
Read & hear about his middle name.
See photos.
See videos.

Subscribe via email

Enter your email address:

Delivered by FeedBurner

Loki's Holiday Gift Drive

Please consider donating to Loki's Holiday Gift Drive for the Alta Bates Summit Medical Center NICU. You can donate by Paypal or credit card here:





Click here for more information, including how to pay by check. For all posts on the Gift Drive, click here.

Blog Archive