Sunday, January 25, 2009

Our own primary (photos)

Loki is growing a tiny bit everyday. While folding laundry I bumped into his first outfits and could barely believe how small they were. I will bring them in sometime to take pictures. Loki is 2620 grams and is fitting easily in newborn clothes (see the outfit Nana?). He looks so much more solid and it is much easier to handle him. Of course he is getting stronger as well, and his head is no longer flopping around like a Raggedy Ann doll. He continues to prefer holding his head to the right side, and almost consistently moves his head from left to right when prone (tummy). It is amazing to me to see him lift up his head and make the turn. Sometimes taking a break mid move, planting his face straight down on the mattress, one of those reasons why stomach sleeping is no longer advised ones at home.

Yesterday (Saturday), we had our own primary for the very first time since we are at CHO. Her name is Libby, and we asked her to primary last weekend. She works pm shifts in the weekends, and we really, really like her. She is friends with Lisa's family which makes it feel even more comfortable, and she just seems to give Loki, and us, that extra care we are so used to at Alta Bates. We are hoping Loki has her again tonight.......

To answer the FAQ about how I, mom, am doing. I am very, very tired, as you can see on the picture below. I am very grateful that dad is doing as much as he does to keep the household running, because I spend a lot of time in the hospital. It is exhausting to be the hospital day in day out, CHO is almost always noisy and the light is bright. There is no calm space to withdraw and really take a rest. However, it is just a little too far from home to easily go there and get stuff done between breastfeeding. Although Loki is doing much, much better with the breastfeeding when he is awake and hungry, he is usually somewhat asleep two out of three times. This makes breastfeeding frustrating at times. The problem is that he has no time to get hungry again as they put him, understandably so, on a tight schedule. When I am there, most day nurses over the past few days leave us be. I appreciate this in general, but they tend to to step in mainly to sort of tell me what I should do different: start earlier with the breastfeeding, never mind he is still asleep and shows no hunger signs; don't push his feeding tube back into his nose by myself, despite the fact I told them 20 minutes ago it was really coming out; use a different kind of cream for his diaper etc. etc.

Summarized, I am done with this hospital experience and want to have sleepless nights at home with our little guy waking us up when he is hungry or gassy grunting and groaning.

Loki and his beloved musical bear:


Chubby cheeks again (in real life the cheeks look less chubby by the way):


Oversight of Loki's room:


Sleepy baby:


Sleepy mommy:

11 comments:

Anonymous said...

Mijn god, you must be tired. Prikkelarme omgeving ???? Can I go in and breastfeed for you one day in Feb? I believe there must be some left there...

I can feel your exhaustion. Get sleep soon!! (I can't really think of a good solution that probably you haven't tried like meditating or so).

Love. kyra

marieke said...

Wouw, Loki is big! And besides you look tired, you also look so in love with him. Lieve mom, you and dad are real hero's. maybe an ipot with meditation music helps to get some rest in the hospital?
Hope you hear monday more about the surgery. Big X

Anonymous said...

Beautiful pictures as always! He looks healthy-chubby, not bloated-chubby this time! As for the tired bit, ask the social worker if you can have a day pass sometimes to the Family House, as I know it's sometimes possible. That way you can eat a real lunch, take a nap, etc. And if you want/need an iPod, you're welcome to borrow mine. Glad also you're having good nursing luck. -Jennifer M.

Eric Rubin said...

any post that goes up at 4:18am is a telling sign that you are a new mom. You look great and so does loki. i cant wait to meet him!!

Anonymous said...

Lieve Kathalijn, wat zijn jullie mooi,moe ook maar het ziet er zo lief uit , pas goed op jezelf, probeer wat te rusten,Bob is hier en heeft ook naar jullie gekeken, vindt het mooi en alzo groot.
lieve groet Greet

Anonymous said...

Lieve Mom,
Je ziet er moe uit, maar ook lief, zo met Loki. Hij is zo groot!!
Ik hoop dat hij sterk genoeg is dat ze maandag beslissen dat de operatie gaat gebeuren.
Hij is al wel zo sterk dat hij zijn hoofd kan optillen, snel hoor! (Komt je trotse moedergevoel al opzetten?)
Weten dat het thuiskomen steeds dichterbij komt maakt ook de frustratie steeds groter van niet je eigen weg kunnen volgen (net als dat je op vakantie gaat en er ineens ook erg aan toe bent, terwijl je gewoon doorgaat als je nog geen vakantie had gehad). Ik wens je veel kracht toe om deze laatste weken ook nog goed door te komen.
Dikke kus Maaike

Suzan said...

Arme mom,

Wat lijkt dat me zwaar zeg! Ik hoop zo dat jullie snel naar huis kunnen en af zijn van deze niet fijne omgeving!

Heel veel liefs en kracht toegewenst om alles te kunnen volhouden!

Suzan

Anonymous said...

Lieverds/ Honeys, Wat lief, how sweet, jullie op die foto's. you on these photos. Ontroerend mooi! Die wordt geprint. En lijntje, haal maar gauw wat slaap in hoor, als je kan. En straks krijg je verterking. Misschien dat het dat wat makkelijker is om wat slaap in te halen. Liefs voor jullie allen, Heleen & Frits

Unknown said...

WOW!! Loki looks so good.... He is such a big boy!!

Mascha said...

You have spent 14 weeks in the NICU being there for Loki. I can't think of much, or anything else that is as exhausting in a physical and emotional way as this experience. I have some lavender to spray on your pillow that might be a bit soothing, if you want it.

I can understand you want sleepless nights at home. They will at least be more peaceful.

Love,
Mascha

Janet said...

Dear Loki-Doki,
It was so great to see you face-to-face the other day. You looked good then, but you look even better now. By the size of those cheeks, I can see that it must be time to go home!!! I wish those surgeons could hurry up and make up their minds already. Oh well, I know they want to make the best decision, but the sooner they can make one, the sooner you can go home. It was great to see your mom, too. Say hi to your dad for me;we miss seeing you all around the NICU and that is made more difficult by the knowledge that you are not tucked in at home yet.
I hope to visit again soon, but would really like it to be at your house, not the hospital. You work on that, Loki, okay? Until then,
lotsa knuffels,
Nurse Janet

About Loki Sky

Loki Sky is a special little man. He was a very early micropreemie, weighing only 610 grams (1 lb, 5 oz) after 24 weeks, 3 days gestation, born to an American Father and a Dutch Mother in Berkeley, California on October 18, 2008.

On January 11, 2009, while still in the hospital NICU, his one kidney stopped working. It was repaired after three surgeries. After spending time in three hospitals in three cities, Loki came home on February 17. He struggled with eating, and then stopped in July, leading to 8 days in the hospital, a failure-to-thrive diagnosis, and a NG feeding tube. On October 10, a minor surgery installed a G feeding tube. Another procedure replaced it with a new one, and then again with a Mic-Key button in Jan. 2010.

In August 2010, he and his parents moved to the Netherlands.

Read about his first name.
Read & hear about his middle name.
See photos.
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