Friday, January 30, 2009

Sleepy peeps

Loki is up to 2810 grams. We will likely authorize one bottle feeding per day. We are hoping that at this may help Loki learn to breast feed. We don't want to bring Loki home while he relies on his feeding tube, and if this is the only thing that keeps him in the hospital, we may have to. The occupational therapist is not too supportive of a bottle ones a day because she is a little worried about his suck, swallow, breath coordination. However, she only observed him suck for approximately three minutes. He has to learn somehow, and we'd rather find out whether he has a more profound issue that requires help, while we are in the hospital with nurses around and a monitor.

Nurse Margaret stopped by from AB today. She brought yummy food again! It is always a treat to have her visit. She certainly empowers mom to make the right decisions.

Also, yesterday mom ran in to Theresa, who is one of Loki's nurse practitioners at Alta Bates. It was great seeing her and having a chat in the parking lot. She always shows a lot of support for whatever is going on!

Here are a couple photos of me and the little man.


Sleepy like me:

7 comments:

berkeleygal77 said...

Glad you got the pacifier/stuffed animal after all! And so proud of Loki and you both for him moving to a big boy crib and for being over 6 lbs.!

marieke said...

Dear dad,
It seems you and Loki are a good couple! I can imagine you are sleepy and so tired.(Is this word the same as a tire from a car?....)There will be a time the whole hospital-thing is over but at the moment this is reality and all 3 of you are so strong in dealing with it. Unfortunately Loki started his life a little odd. Besides that he is blessed with the most dedicated parents in the world! Good luck with the things coming up in the nearby future, give Loki a hug from me, take a couple yourself and share them with mom! X

Anonymous said...

Lieve schatten,
So proud of the 3 of you... and so adorable our little one is...
I fully agree with yesterdays comments. Don't let anyone make you lose your self confidence, Lijn! Keep your mind and heart open, be friendly if you can, but stick to your self and to what you know is rihgt, or to what you realy whish (and that is rihgt too).
Big hug for the 3 of you,
Oma Heleen

Anonymous said...

Nice pictures! I can feel the love and tenderness.
What a scary situation yesterday on that (not) breathing part. I can imagine that you what to try things out before coming home. Let nurses and others advice you, but do what you think and feel is best.
In Holland baby's go home with feeding tubes (they do also in the US probably), and over here it's also possible to have a little oxygentank at home, just in case. But then again, when you come home with the three of you, Loki wil be stronger then he is now.
Nice to hear that Janet also sees the best parents in the two of you. We say it all the time, but what does a saying like that mean if it comes from people that love you very much... Now you can see that it's really true!
X Maaike

Anonymous said...

How cute...

p.s. cold is getting better! keep fingers crossed. See you next week (wow)

Kier

Dad said...

Maaike: Yes, sometimes kids come home here with breathing tubes (cannula) and oxygen, but only if it is expected to be needed for months. If it will be just a couple weeks, the baby will wait it out at the hospital. I don't know about feeding tubes.

Marieke: Yes, tires on a car and tired without sleep are spelled the same in the US. The Brits use tyre for the cars. But what do they know about English ?!

marieke said...

What a support from AB in the former comments! Thanx Janet, Amber and Rhea, i'm sure mom and dad will feel the benefits of your comments. A hug for you to from mommies sister, tante Marieke

About Loki Sky

Loki Sky is a special little man. He was a very early micropreemie, weighing only 610 grams (1 lb, 5 oz) after 24 weeks, 3 days gestation, born to an American Father and a Dutch Mother in Berkeley, California on October 18, 2008.

On January 11, 2009, while still in the hospital NICU, his one kidney stopped working. It was repaired after three surgeries. After spending time in three hospitals in three cities, Loki came home on February 17. He struggled with eating, and then stopped in July, leading to 8 days in the hospital, a failure-to-thrive diagnosis, and a NG feeding tube. On October 10, a minor surgery installed a G feeding tube. Another procedure replaced it with a new one, and then again with a Mic-Key button in Jan. 2010.

In August 2010, he and his parents moved to the Netherlands.

Read about his first name.
Read & hear about his middle name.
See photos.
See videos.

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