Saturday, February 7, 2009

Saturday afternoon news: A whiff of optimism

At home, I just got a call and an update from Mom. While there are still no conclusions or diagnoses, there is reason to be a bit more hopeful. Most importantly, little Loki is producing some little Loki urine. In fact, it is near a normal amount. His blood pressure remains high, though. Results should be available soon for his blood electrolytes (i.e. potassium and sodium) and ultrasound, and available later for a blood culture to test for an infection. An arterial line is being put installed. This is a more permanent IV that allows frequent blood sampling without new pokes.

No one knows exactly what is wrong. The two main groups of specialists - nephrologists (kidney doctors) and urologists (urinary tract doctors) - are sort of pointing to each others' system as the cause. There is now less reason to believe that the kidney is not functioning, and more reason to believe that Loki's body is in a type of shock from the surgery. (I hope that is the case.) However, Mom was warned that, if Loki is having a shock reaction, his condition could get worse before it gets better. In fact, he may end up on the ventilator and breathing tube again, briefly. He could also have an infection, which would not be good, but is easier to treat than kidney failure like ATN.

Mom is sitting at his bedside, talking and consoling him. All the nurses and other staff say that his appearance has greatly improved since she arrived, and I am not surprised. When I dropped her off, I went with her to Loki's bed, and he clearly responded to her voice, trying to find her with his big blue eyes. With his vision poorly developed, I believe that sound is his main sense, and that hearing Mom's voice again after a few days without it must be encouraging.

Myself, I went the doctor, and she said that I am not, nor have I been, very contagious. I probably have a mild virus that is irritating my vocal cords. Barring any sudden developments, I plan to stay at home today.

8 comments:

Anonymous said...

That's great to hear. we keep on sending more of the good stuff to Loki. we do appreciate it so much that you keep us informed.
Love y'all , Oma heleen en Opa frits.

Unknown said...

All good news except Dad being sick.Lots of hot tea with honey, vitamins,fresh fruit. Zinc supplement would help too but only with lots of food to prevent nausea. REST - REST - REST!!! I'm here if you need me. Hugs to our sweet baby. Like Chloe says "I love you bigger than the sky" (since there is nothing bigger).....nana and papaw

Anonymous said...

LOKI--WHAT IS GOING ON? I take a one day break so I can clean my house, and you scare everyone? Wow--I am just catching up since yesterday am, and remain amazed at fast things can change. I know you are exhausted, and worried, even quite frightened--BUT UCSF is the place to be for these problems. Jesse, I think you are earning your MD right in the trenches of real life--your grasp of all the medical info is impressive...
My hope is that Loki can get through all this scary stuff now, while he is in the hospital with all this help, so when he gets home, your family can actually experience some calm, even boredom!
I'm thinking of you all, praying, and holding you all in my heart.
Love,
Cheryl

Anonymous said...

My hopes and prayers for strong little Loki!
~Rhea

Anonymous said...

Lieve mom en dad,
What a relief it must be for mom to be a Loki's side now. What a great response of him, while being so sick. We keep on thinking of you and sending positive vibes!
X Maaike

Janet said...

Lieve Loki,
You are 16 weeks old today. Doesn't your kidney know that you are supposed to be "knuffel"-ing with your mom and dad at HOME by now? What's going on,little dude? Well, I'm sending you all my best, all my positive thoughts, and all my prayers. Tell that kidney to straighten up and fly right!!
Knuffels and Kussen,
Auntie Nurse Janet

Dad said...

Cheryl: Yes, I am not so sure having a newborn at home will provide "some calm, even boredom." Nevertheless, I look forward to it!

Unknown said...

I am so glad Mom is able to comfort him. Our prayers continue...

About Loki Sky

Loki Sky is a special little man. He was a very early micropreemie, weighing only 610 grams (1 lb, 5 oz) after 24 weeks, 3 days gestation, born to an American Father and a Dutch Mother in Berkeley, California on October 18, 2008.

On January 11, 2009, while still in the hospital NICU, his one kidney stopped working. It was repaired after three surgeries. After spending time in three hospitals in three cities, Loki came home on February 17. He struggled with eating, and then stopped in July, leading to 8 days in the hospital, a failure-to-thrive diagnosis, and a NG feeding tube. On October 10, a minor surgery installed a G feeding tube. Another procedure replaced it with a new one, and then again with a Mic-Key button in Jan. 2010.

In August 2010, he and his parents moved to the Netherlands.

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