(A couple details were updated on Friday morning)
Loki is out of surgery, and everything appears to have gone well. He is recovering now.
As expected, the top inch (2.5 cm) or so of Loki's ureter was in poor condition, somewhat like a wilted plant. This was cut out, and there was plenty of extra length to pull the remainder up and attach it to the kidney. A stent - a plastic tube inside his flesh tube - was placed in the ureter to keep it in place. Loki's nephrostomy tube, the one installed during his surgery a couple weeks ago, was removed. A Penrose drain was placed near the bottom of his kidney, on its outside, in order to collect any stray fluid or urine that leaks from all the places that his kidney has been poked. Added Friday morning: Finally, a Foley catheter was placed in his penis (yes, ouch) into his bladder to ensure that urine flows out and does not back up and reflux up the ureter and into his kidney.
He was extubated (breathing tube removed) while still unconscious. The surgeons did not work on his hernia, because they did not want to interfere with the delicate work they had just done, and because Loki will have to go under general anesthesia again.
I rode up the elevator with Loki and into his new room. He was waking up, but not quite aware. I turned on his favorite song (or at least the one that Mom says is his favorite!) on his musical bear, and placed that in his bed.
All of the several doctors and surgeons involved in the surgery took plenty of time to talk with me. I am very appreciative of that. The lead surgeon (Laurence Baskin, Chief of Pediatric Urology) gave me his card and said to email any time.
The timeline in the future:
- Loki will gradually wake up, and continue to get some pain medication. He won't be fed for perhaps another 24 hours. He will be monitored for the usual stuff: breathing, temperature, urine, poop, etc.
- (Added Friday morning) His Foley catheter should be removed tomorrow (Friday) or Saturday.
- His Penrose drain will be removed soon after, in perhaps a week or less. It is removed through a very minor surgery, using local anesthetic and stitches.
- Perhaps on Monday, Loki will be transferred back to Children's Hospital Oakland. He can't go to Alta Bates then, because there is not a pediatric urologist there.
- After another week or ten days, he may get transferred from CHO to Alta Bates.
- It sounded like he could go home within two weeks, if all goes well.
- In about a month total, the stent will be removed. This will require general anesthesia. His hernia will be fixed then.
Waking up a bit:
While I am posting photos, here is one more. Loki's new room has a view to the north. Not bad, eh? (Like all photos, you can click to enlarge it):
12 comments:
Just called again to say hi, and the nurse said Loki again opened his eyes when he heard my voice. I am soo comforted by this. It means he recognizes my voice and feels some sort of continuity! He even made a little groan when I talked to him!
Such good news! What a strong trooper!! (Wonder where he gets it from? :) ) Thinking of you and hoping for speedy recoveries on all fronts. love, liz
Good job, Loki! And good job surgeons and team...and now, Jesse and 'lijn, just get BETTER. Loki will be more awake in a day or two, just when you are there to be at his side.
I am so relieved that things went well, but not surprised. This little boy is full of incredible life force. I guess when you named him after a Norse god, and a trickster at that, you knew what you were doing! My advice to you parents--never underestimate your little boy--and watch out world, here he comes!
Love,
Cheryl
I'm so happy for Loki! He's such a strong boy! And I'm thrilled that he had his surgery at UCSF (they have such wonderful staff - I did my NICU preceptorship/training there and found the skill level facinating. Hugs and kisses to him!
~nurse (auntie) rhea
Wow Loki! We're proud of you. You did it all by yourself (with a little help of some doctors, I know). I hope your parents get some rest after this nerve-wracking day. We waved at you from the plane and hope we get a little chance of a little glimpse of you, but first will spoil Mom and Dad with lots of gifts.
Love you,
Kyra and Erwin
Wat fijn dat de operatie goed gegaan is. Dat zal een hele zorg minder zijn, nu kunnen er weer stappen voorwaarts gemaakt worden. En wat zou het super zijn, over twee weken naar huis. maar ook, rustig aan, alles gaat stap voor stap.
Ook goed om te lezen dat Loki niet blij was dat hij vor de operatie geen eten mocht hebben. Dat werkt dus goed, hij krijgt gewoon vanzelf honger. Dat sterkt je neem ik aan in je vertrouwen om meer op vraag te gaan voeden ipv een strak schema.
Laat je verwennen door Kyra en Erwin, en knap maar snel weer op!
Kus Maaike
We all, worldwide has hold our breath yesterday I think.
And "our" Loki did it!!!
Because meanwhile of course you will understand it's also "our" Loki by now.
What a relief it must be for both of you that he will now slowly recover and as Marieke said,things go step by step and you can count the days now that Loki comes home!!
It helps so much that he has heard your voice and his favourite music.
That was at that moment such a big comfort for him, you did so well!
Hope you can find some relaxing moments,love for both of you from Karin.(Amsterdam)
Lieve sterke Loki Boy, o nee, fout, het is LokiSky, zegt Muus. wat fijn dat alles goed is gegaan. Nu maar gauw aansterken! Mom, het gaat vast weer snel beter met jou. Een grote spanning is voorbij. Zorg goed voor jezelf. En Dad: je bent een kanjer, dat je toch ook nog aan het werk gaat!
Genieten jullie van de korte tijd dat je met Kyra en Erwin bent: met Muus gaat het prima, dus ze hoeven zich geen zorgen te maken: en hij krijgt niet elke dag chipjes, hoor!
Rauwkost vindt hij net zo lekker. We branden nog maar weer wat kaarsjes voor het spoedige herstel van Loki. Take care, Edith, Willem en een kusje voor Loki van Muus.
Goed zo Loki!! Wat fijn dat mama aan de telefoon was en papa bij je bed. Je komt nu heel snel thuis weet je dat, en oom Martin en ik komen je opzoeken. Hopelijk kunnen we je ook echt zien. (geen verkoudheden etc).
Hele dikke knuffel XXX Marieke
I am very happy to hear that surgery went well. He is a trooper. and somehow to me wthout his clothes on looks even healthier.
great news!!
Whew!
Well done, Loki.
Well done, doctors and nurses.
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