Saturday, February 21, 2009

Troublemaking, again

Loki was again awake and cranky from 2 AM onward, only this time for a longer period. We believe that it may be due to his antibiotics (mentioned yesterday) and the large amount of supplement in his milk (27 calories from NeoSure per fluid ounce of milk). We obtained a different antibiotic, and will give it in the morning instead. We are removing the NeoSure for the overnight feedings, and may resume them at a lower level.

But Loki is also not eating enough: perhaps only half of what he should. Again, this may be related to his digestive problems and to the NeoSure supplement in the milk.

Looking at my previous two posts, perhaps I gave the impression that this is easier than it is. Sure, it is not too tough for me, but that's because my mom is here, and because Loki's mom is doing more caring for him overnight (for various reasons). But not only is she taking most care of him, she is still on the pump. Loki is being fed by bottle, because we can add the supplement and measure how much he gets. All this adds to a lot of work and not much sleep for her.

Tonight's thanks go to the nurses, doctors, and staff of Alta Bates Medical Center, Children's Hospital Oakland, and UCSF Children's Hospital. Wow... "thanks" is not nearly enough. The combination of expertise, technology, and the "human touch" is remarkable. We wouldn't be sane, and Loki wouldn't be as healthy, without them. We will never forget.

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About Loki Sky

Loki Sky is a special little man. He was a very early micropreemie, weighing only 610 grams (1 lb, 5 oz) after 24 weeks, 3 days gestation, born to an American Father and a Dutch Mother in Berkeley, California on October 18, 2008.

On January 11, 2009, while still in the hospital NICU, his one kidney stopped working. It was repaired after three surgeries. After spending time in three hospitals in three cities, Loki came home on February 17. He struggled with eating, and then stopped in July, leading to 8 days in the hospital, a failure-to-thrive diagnosis, and a NG feeding tube. On October 10, a minor surgery installed a G feeding tube. Another procedure replaced it with a new one, and then again with a Mic-Key button in Jan. 2010.

In August 2010, he and his parents moved to the Netherlands.

Read about his first name.
Read & hear about his middle name.
See photos.
See videos.

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