Saturday, February 7, 2009

Updates

Although the nurse suspects that the kidney makes some urine, none of it is coming out the right route. However, she cannot guarantee that the fluids leaking out of the pen rose drain (it is not the wound) is indeed urine. They stopped giving him potassium in his IV fluids and his level has gone down from 6.5 to 6.3, they like this number to be between 4 and 5. His sodium is back to normal, but his creatinine is too high. This does indicate that the kidney is not functioning normally.

He was put back on 2 liter nasal cannula 30% oxygen because he started to have significant blood oxygen desaturations (desats). His nose and chest are clear, so they do not expect that this is a cold. In and of itself the kidney issue should not cause desatting. They are checking for infections, which is usually starting to show by desats. I guess he could also just be tired from the whole ordeal, although they do not seem to assume that.

At this point in time our worries are beyond imaginable, and we feel we have been catapulted back in time 2.5 months or so. I (Mom) started feeling significantly better and better throughout the day, where I now do not really need to blow my nose anymore. This means I can go in tomorrow with Dad, if he indeed is still feeling well. At this point in time it feels like hell not being around our little guy. Sleep is almost impossible and the little sleep I get is filled with nightmares. Our bags are more or less packed so we will probably leave pretty early in the morning. Sorry to all family members if we are not reachable by phone. We will keep you updated as soon as possible after we find out more.

Please send all your prayers and positive thoughts to Loki, he really, really needs it!

3 comments:

marieke said...

O man, I wish I could do anything!!! I wish I was a wizzard who could "tover" Loki into a healthy little dudie maludie. But I believe in his self healing power. Together with the doctors and nurses experience he will come back to the healthy world. Come on little babylokisky, you can do it. Take your time and energy to recover, amaze everybody who cares for you, remember we are all over the world thinking of you.

Anonymous said...

We keep on sending prayers and positive thoughts, and next to that we also send love and positive vibes and a candle is burning allways. But then still we wish we could do more! Loki, fight this one too! Love, oma heleen en opa frits.

Anonymous said...

Jeetje, dit is schrikken na 1 dag geen blog kunnen lezen. Lieve mom en dad, ik denk aan jullie en wens jullie heel veel sterkte. Loki, zet hem op!!
Dikke kus Maaike

About Loki Sky

Loki Sky is a special little man. He was a very early micropreemie, weighing only 610 grams (1 lb, 5 oz) after 24 weeks, 3 days gestation, born to an American Father and a Dutch Mother in Berkeley, California on October 18, 2008.

On January 11, 2009, while still in the hospital NICU, his one kidney stopped working. It was repaired after three surgeries. After spending time in three hospitals in three cities, Loki came home on February 17. He struggled with eating, and then stopped in July, leading to 8 days in the hospital, a failure-to-thrive diagnosis, and a NG feeding tube. On October 10, a minor surgery installed a G feeding tube. Another procedure replaced it with a new one, and then again with a Mic-Key button in Jan. 2010.

In August 2010, he and his parents moved to the Netherlands.

Read about his first name.
Read & hear about his middle name.
See photos.
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