Saturday, February 7, 2009

Saturday morning news

Mom has been regularly speaking with the nurses and doctors at UCSF. (I find it amazing that the chief of pediatric urology was there both last night at midnight and this morning at 6. I don't think these are his regular hours!)

Loki is stable. His potassium and sodium in his blood are not too far out of the normal range. He is producing some urine but it is only coming out through his Penrose drain. Some urine coming out this way is not very strange after a surgery. The problems are that none is coming out via the normal route, and what is coming out via the drain is too dilute. As Mom mentioned, he is on the nasal cannula for oxygen support, at 30% oxygen and 2 liters per minute. This need could be unrelated to his current kidney problem, and instead just be due to exhaustion.

The urologists still suspect ATN as the problem. The good thing about that, accoding to my Internet reading, is that if the cause of the ATN can be removed, then the tubules repair and regrow fairly quickly. After surgery, the cause could just be the shock, so there is chance this could resolve itself. Another possibility is that Loki could be temporarily placed on kidney dialysis, in order to give his kidneys a chance to heal. Thus, for now, nothing is being done besides very close monitoring of out little man. The urologist was "cautiously optimistic."

In a reversal, my minor cold symptoms have returned, and Mom's have left. I am going to drive her to UCSF but return home. She has a place to stay nearby. If needed, you can reach either of us by our mobile phones. I, however, have lost my voice.

4 comments:

Anonymous said...

Hi guys,

What a terrible way to recover and be launched into yet another chapter of uncertainty. And we haven't even talked to dad yet. We will try to call you, but our cell phone doesn't seem to work. MOm and Dad, we really wish we could do more for you, this is someting beyond our ability. So we will keep hoping and thinking of you. Let us know if you need our company, we'll only be three deserts down.

Love,

Kyra and Erwin

Anonymous said...

You are all in our thoughts and prayers.... I'm so looking forward to all of this being behind you. Let's get Mr. Loki healthy so you can get him home and start your family life!

Hugs and Love,

Jennifer, Darren, Julia and Joe Boyden

berkeleygal77 said...

I hope that the de-sats and ATN are due to fatigue/shock and so will resolve quickly. I'm visualizing healed kidneys.

Anonymous said...

Liev Mom and Dad,
We duimen voor jullie, and Loki: je kan het!!!we are sure: stay fighting! Love Wikllem en Edith.

About Loki Sky

Loki Sky is a special little man. He was a very early micropreemie, weighing only 610 grams (1 lb, 5 oz) after 24 weeks, 3 days gestation, born to an American Father and a Dutch Mother in Berkeley, California on October 18, 2008.

On January 11, 2009, while still in the hospital NICU, his one kidney stopped working. It was repaired after three surgeries. After spending time in three hospitals in three cities, Loki came home on February 17. He struggled with eating, and then stopped in July, leading to 8 days in the hospital, a failure-to-thrive diagnosis, and a NG feeding tube. On October 10, a minor surgery installed a G feeding tube. Another procedure replaced it with a new one, and then again with a Mic-Key button in Jan. 2010.

In August 2010, he and his parents moved to the Netherlands.

Read about his first name.
Read & hear about his middle name.
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